It is 5am on Wednesday morning. I have been up for about forty minutes, and then I just decided that some people just wake up at 5am, so why not be like those people today? Pain kept me awake alot last night, because I mis-calculated my pain medicine regimen and didn’t take a pill when I should because I didn’t want to sit up for 30 minutes waiting for it to be digested. Ho hum!!!! Here I am, at 5am.
Pain has been the most consistent feature of this cancer so far, although I don’t know if I am experiencing pain because of cancer cells, or because my lungs are surrounded by liquid that is swelling and pushing against them and against my ribcage. I am hoping for the latter, and that we can figure something out to reduce the pressure. I miss sleeping on my side, all snuggled up in bed with my husband, dog, and sometimes, a cat.
Last Friday I was diagnosed with a rare cancer called Mucinous Adenocarcinoma with Signet Ring Features. It is pretty funny since I am a jeweler, and I am experiencing the cancer cells that are shaped like pretty little rings from King Arthur’s Court. I am not sure what those little cells do in particular and need to do some more reading, but I get easily overwhelmed by Dr Google. Right now, as I write, I am moving a hot water bottle around my torso, getting relief from achiness. It works well, but I wonder if there is such a thing as a warming vest? (Just Googled – that’s a yes).
Last week I was diagnosed with cancer. I have cancer. I keep repeating that to myself and it sounds weird every time. I have cancer. I have cancer? What?
When people tell you that you have cancer, they speak really softly and nicely. They treat you kindly wherever you go (especially the pharmacists). What they don’t do is move nearly as fast as you want them to in finding a treatment plan that is going to work and make you feel better. That could happen ANY DAY, by the way. My first appointment is in two weeks. Two. Long. Weeks. What will I do with all of that time? Two weeks of waiting, two weeks of being patient.
Two weeks of writing? Two weeks of drawing? Two weeks of sewing? Two weeks of — anything. Perhaps during these doldrums of time when I am awake with achy-ness and pushing my achy bits against a hot water bottle, I can think about what I would like to do with this time. All of a sudden, I feel that time is ticking, time counts, time is fleeting.
How does one know what to do? Do I get angry? Sad? Vengeful? Wistful? Regretful? I spent the other night exploring regret and plumbing its depths. Do I do the same with the other emotions? It all feels exhausting and confusing and —- futile. But also, not. It is also eminently precious.
Goddammit.
I want to buy a new set of sheets because of all the time I am spending in bed. I ask myself: should I do this? Is this a ridiculous want? And then – why does it even matter? Because I have CANCER. Jeezum.
Kathleen Bowman is a person who lives in our small community up here in Downeast Maine, and a few years ago, she saved my life.
A few weeks ago, she and her husband came into the gallery with some friends who were staying with them. I didn’t say hi at first as I was talking to one of the friends who was gazing out the back of the gallery at the garden; there is a beautiful, luscious garden of hostas and rhododendrons and a small pond out the back of the gallery, and it is mesmerizing. He said, “do you know my friend Kathleen?” I said and smiled, “Kathleen saved my life”. He looked at me, quizzically, and we walked to go and say hi.
Since Wednesday of last week, I have been experiencing crazy edema in my legs and an increasing sense of pain in my back and abdomen, coupled with digestive troubles. It feels as if my whole system has become locked up and like it is stopped. It is a disconcerting and painful feeling. The swelling of my legs is scarier still, and makes walking uncomfortable. It also reminds me of a very scary time in my life when this happened before, when I was 18 years old, during my senior year of high school. At the time, for months, I hid the edema under the baggie pants that were customary in the late 90s. I loosened the shoelaces in my Vans to accommodate swollen feet. In Creative Writing class, I sat on the couch under the classroom’s tiny windows. I loved that class, obviously. One day, my teacher crouched down near me to help me and friends with something, and she noticed my swollen ankles under my pants and she asked me about them and how long they had been like that. I said I didn’t know and she asked a friend to walk me to the nurse. The nurse asked me the same question, and I said a few months. (Why? I was asked a lot during that time. I was afraid I was dying, and I was a sad and lonely child, and thought maybe it was better if I just did that, quietly). My mom came to get me and I went to the doctor and they admitted me to the hospital with a blood count of 1.7 (normal is 7). I spent the next two or three days in the hospital, and it was one of the most lonely times of my whole life.
I know my mom dropped me off at the hospital; she must have. But I was alone at night, and the doctors were assholes because I was (probably) a teenage asshole to them. I watched “Boogie Nights” and didn’t sleep and wondered if I was going to die in there by myself. I was on oxygen, which was great because I could actually breathe for the first time in a while, but thought to myself, over and over, “this isn’t good”. Some friends came, but the best ones didn’t, as it was too scary. It was too scary.
When the edema showed up last week, immediately I became scared; scared of what was happening, scared of the lack of answers, scared of the fact that this entire month I have just progressed into feeling worse rather than better, and scared of having to go to the hospital. My doctor told me on Friday that she wants me to go to Bangor Hospital and not MDI because it is bigger and has more resources. Immediately I was sent into an emotional tailspin that lasted until tonight, when I caught the truth on the wind and spotted the rise of a crescent moon that I could wish upon. I wished for it to help me alleviate my own suffering; my fear of being alone in a hospital at night. At the moment when I realized it, I realized how scared my younger self was all the time, and I remembered when Kathleen saved my life.
Kathleen is an energy worker of a sort; I can’t really tell you what she does exactly. She “tunes in”, she says, and then pictures show up in your head and she asks you to describe them. Sometimes you lie on her massage table and she does something Reiki-like that isn’t Reiki, moving her hands above your body. Over time, I began to trust Kathleen, and then one day it all came clear; the young version of myself, trapped in a cold cave that was made of stone. After a while, she was coaxed to come out of the cave, and the older version of myself was standing there, tall as anything, with a cloak or wings on, or both, and wrapped her in a hug and told her she was safe and could stay out. Tonight, on the driveway, under the moon rise, I remembered that moment, and sighed and cried at my littler self, the one who was so scared and alone a lot of the time. She didn’t deserve it, and she was just a child, and also, she doesn’t need to drive the bus anymore.
All of a sudden, I knew I would be ok and I just have to figure out how to be. I smiled at the moon and thanked her for always being there, right where I need her to be. I felt relief and that a 100-lb weight had been lifted. Now, my stomach is still killing me and my legs are still swollen, but I know I won’t be swallowed up in fear.
I have been in family therapy for the last few months with my mother and brother, and I have learned to appreciate my mom a lot more than I ever have done, but I have also learned that things were more messed up than maybe I realized. I was, after all, only seeing it from my perspective. Now I see things from my brother’s and my mom’s perspective, too. So even though I felt alone and scared so much as a child, I don’t think it was anything intentional on the part of my parents. My dad was actively seeking to maintain a series of delusional stories that covered up hard truths, and my mom was running around behind him, cleaning up. Tonight our therapist asked her why she did that for so long, and my mom said she was in survival mode until she started her career as a realtor. Our therapist asked, then, a harder question, which was “do you think you were really in survival mode the whole time, up until the point when he died?”. Hard truths. How can you parent your children when you are just trying to survive yourself?
Deep thoughts on a dark night. Everyone has told me that Lyme teaches you lessons, and that part of the disease is figuring that out. I learned tonight that I don’t need to be afraid of being alone in a hospital, breathing oxygen, watching bad tv, and being afraid of dying. When we all took care of Mary Ann, we never left her alone. We watched stupid tv and put on makeup and played with Instagram filters and listened to Tupac at 5am when the morning nurses came in. We took copious notes about treatment and laughed as much as we could and made the couch look like a hospital bed so we could be close together and giggle. That’s how my hospital stay will be, if there is one. If I am to die, and we all will, I won’t be alone. I will be surrounded by people who I love and who love me.
What a gift, what lightness. Let’s not stress when there is so much beauty in the world.
As I listen to my surroundings, I hear the song of many birds, the hum of summer traffic on the road, and the wind moving through the thousands, millions, of trees on our land here in Maine. Every year, later than I would like, the leaves come back to the trees after months of absence. One day, they are tiny speckles of lime green, and the next, there are millions, billions of lime green leaves dancing in the air. Just before that, the birdsong comes back with the birds, and the silence of a wind-whipped winter is over. I love sitting outside in the wind, in the sun, in nature, in this tiny sliver of peace and paradise: a small house, green, with a nice porch, and plants all around.
I started feeling really crummy two Tuesdays ago, but couldn’t place the feelings; was it bad hummus? Had I drunk pond water on my Monday swim when it was so hot and clear the only thing to do was to swim? Or perhaps I had done that on my Tuesday swim, when conditions were similar only cloudy? On Tuesday evening I started to feel like there was a rock in my belly, or a beach ball, or something that was taking up all the space that I usually fill with tasty things like roast chicken or tacos or muffins in the mornings. My belly also became swollen out like a little kid’s. Usually my tummy is fairly flat with its fair share of mid-forties curves and wrinkles. I have been exercising alot on my elliptical and feeling proud of being stronger and my tummy flatter. But no longer. On Tuesday evening I tried to eat dinner as normal but barely ate half of it, saying I didn’t feel super well. I thought: tomorrow will be better.
Wednesday came and went and the stomach trouble became worse: it hurt very much and was very uncomfortable, and with it came this weird back pain across the whole top half of my torso. I had a hard time standing or sitting for long periods of time. If I could lean back, I was ok. If I could lie down, that was better. I was annoyed.
On Thursday I thought I caught the chill of a cool day that followed a few hot ones, but as I drove home from the gallery I recognized the familiar feelings of a fever. By the time I made it home, I was shaking, cold, and feeling rotten. So began my days of spiking 101 degree fevers (high for me as my normal temperature is about 97 degrees), breaking fevers into crazy sweaty messes, and the realization that something was wrong with me.
On Friday I managed to get in with a random doctor who told me that she thought I had a stomach bug that was roaming around. I asked her if she would run a tick panel just in case, and she said yes, so we did. I took the rest of the day to chill out, thinking I might be feeling better til the fever started again.
On Monday, I went to my regular doctor and told her I was worried I had a kidney infection and she said she was worried I had Lyme disease. Luckily, the tick panel was already being processed, and on Tuesday, she called and gave me the gross and terrible news that I have anaplasmosis and Lyme disease, together.
Blech.
She also told me I have to take antibiotics for at least 30 days and they are these fun ones that cause you to sunburn so easily you can’t really be out in it. She apologized for ruining my summer (I blame the tick, personally). And since Monday I have been taking two types of antibiotics, twice a day, and probiotics 1 or 2 hours later. I felt better on Thursday, and then yesterday I felt bad again. Today is Saturday, and I am very tired. I wonder if I am now feeling tired from not eating enough, because one of the things with that stomachache from Hell is that my appetite has gone on vacation. Somewhere good, I hope.
One of the strange emotional responses to these illnesses is that I am determined to not sweat the small stuff. That feels good, like I am doing something right in a situation that I cannot control at all. Anaplasmosis is super scary and can kill you in various ways (spooky!) if not treated early, so I am proud of myself for going to the doctor. So in the vein of not sweating the small stuff, I am trying to be a nicer version of myself, more understanding, and quieter. I am trying to spend time thinking about what I think about the state of the country, but not react to it as much as maybe I have been. I am thinking about the importance of creating art in times of dread and sadness, and trying to be participatory in that process.
The energy level is the challenge. Fatigue is real with Lyme and anaplasmosis. I haven’t felt this fatigue in a long time, but I am not unfamiliar with it; legs made of lead or concrete, not strong, dragging through space. I would like to go swimming or maybe just sit in a lake. Today is hot and I hope to fill up our cowboy pool with the cold, cold well water that comes from deep within the earth. I plan to put it on the leechfield, on top of the septic field; I think it’s mostly harmless to that process going on below. Last year when I filled up a giant pot to dip in on the hottest days, the water was so cold it was shocking! (There are photos to prove it!) This year, I will fill up the stock tank and let it sit for a day or two to warm up before I dunk myself in. Over by the leechfield I have planted lots of medicinal herbs and witchy plants, as MOFGA told me I could plant shallow-rooted perennials. Over there we have hops, madder, weld, motherwort, marshmallow, thyme, yarrow, blue vervain.
Ho hum. One of the good things about having peaceful, slow hobbies is that when you are slow yourself, you can still do them. Today I want to work on jewelry, so I am about to head to the studio to do just that. I am working on a series of rings, and I need to order some materials for a custom project I am working on. One of my recovery plans is to wake up early and write in the mornings, as I have much more energy when I wake up than when the afternoons roll around. By then, I feel quite ploddy, like I am going through mud, mentally and physically. These illnesses don’t make me sad, exactly, just tired and a bit disappointed. I like having lots of energy, high vibrations, and excitement. I am sure those will all come back; I just have to let this ride out.
Current projects are:
1.Working on the second edit of the book and finding all the photos that go into it
2. Power rings of various interesting stones and two pendants for a show in August
3. Finishing the third quilt in a series, photographing the three, and sending them to their destinations. The third one has no home, so I wonder who will claim it?
I am drinking coffee now, still listening to those same sounds but the wind is stronger, the sun higher in the sky, the air is warm and dry. My living room is orange and bright with sunlight. We are on new journeys in this life, new career paths, so much exploration! We asked for an adventure and we got one! Who knows what the future holds, but we have managed to pay for everything so far, and I can only hope the blessings continue and continue to grow. Every night I look at the vast spiderweb of stars and ask them to keep helping us, protecting us, guiding us. The Big Dipper right now is just above the driveway and, every night, reminds me that “my cup runneth over” and ain’t that the truth.
I hope you are well, wherever you are, and if you are not, that you can figure out some ways to make it work while you are sick.
Recently, I learned that my father lied for my entire life (longer, actually) about being a father of twins who were born in 1967. One of them is coming to visit my brother and I in August, and I literally could not be happier about a thing happening; all I want to do is hug him and look at his face and take a photo with his tall self (during our first chat, I asked them both how tall they are as my brother and I are very tall, too).
Since discovering the existence of my brothers, I have been meditating on lying and why we do it. Why did my dad do it? Why have I done it (not very much, but I have been guilty of hiding myself and parts of my selves). All of the artwork I have done since December has been of eyes; iteration after iteration of eyes. I make them even when I don’t intend to make them. Eyes, eyes, eyes. Paths. Eyes surrounded by paths. The path of the past to the present. Yesterday I was in my amazing quilt class and we had a guest speaker, Zak Foster, and he said the most interesting snippet “There is no history, not really. There is only the present, and many, many presents.”
I loved that and it made me think. Right now I am going through perimenopause which is this insane journey of weird physical symptoms, overwhelming rage, quick tempered emotions that spin out of nowhere, pain, decisions that are hard for me to make, a sense of perspective, a sense of looking backward to look forward, and a sense that there isn’t as much time in front of me as there is behind. It’s a bit of a mindfuck.
Today I was getting an ultrasound to check that the Mirena IUD I had placed last week to provide me with progesterone is in the right place in my uterus. I had it placed last Wednesday and it has been very painful and exhausting: surprisingly so. It has reminded me that I am older now, and it reminded me of my past presents. When I was getting the IUD inserted, my cervix kept “running away” (the words of my midwife as I have no idea what this means but it sounds weird and sad) from her. She finally had to dose me with some extra Lidocaine and hold on to it with forceps. As I lay there waiting for the inevitable, this wonderful nurse Caroline was holding my hand and telling me that I was a wild horse running free on a beach, like the horses of Chincoteague from those old books. I felt my body tensing up over and over. They kept telling me to relax. I kept apologizing. I remembered something.
When I was about 20, I had this seemingly wonderful boyfriend named Ryan, who was so cute with long hair and who liked to go camping. He was from Midland and we went out to west Texas and camped alot on forestry land and cooked rice for dinner in the dark. We went on an ill-fated road trip out west one summer and discovered we didn’t travel well together, but in retrospect, my part of that was that I was/is/always will be desperately afraid of intimacy as I don’t trust it. The model I was shown was irregular and broken and weirdly sad and incomplete. Now I know that at its center was a big lie, which must have contributed, but isn’t the entire explanation. Either way, I discovered that I was pregnant with Ryan’s baby later that year and we both decided we didn’t want to have a baby then (I haven’t investigated how I feel about this just yet but think it is mostly ok with me). Ryan came in with me when I was having the procedure – the doctor must have been very open-minded? – and he told me later that I tensed up and looked like I was in the most pain of anyone he had ever seen. I remembered this vividly in that moment last week when I was getting the IUD. I couldn’t stop tensing up, I was very quiet, and I kept squeezing Caroline’s hand. At one point I asked if I was hurting her, and she said no, to keep squeezing, so I did.
Today I went and got the ultrasound to check its placement and everything looks good according to the tech. She was very nice and her name is Jane and she has been doing ultrasound for 35 years which I find amazing. While she was ultrasounding, she kept asking me if I was ok and I kept telling her that I was, but I was tensing up and was trying to get myself to relax. She took about 30 photos of my uterus from on top of my belly and inside my body, showed me the IUD (it looked good!) and off I went. I apologized to her and told her I had a lot of medical trauma associated with my childbirthing body parts, and she said she was sorry, and I told her it was ok as it wasn’t her fault.
After Ryan and I had the abortion, everything was hard and I think we started fighting about everything everywhere for months and the fights got worse and worse and worse until his neighbors didn’t want us to live at the co-op anymore. He moved into a little house with a friend and we kept trying but it was done, somehow. The fights got worse, and then 9/11 happened and I remember noticing there weren’t any planes in the sky when we sat on his porch. I was supposed to go give a presentation at UT about something and he was threatened and we fought and he pushed me into a wall. Later that day he broke up with me.
Last year, last May, a friend of mine was killed by her partner. He killed her, set fire to the family house she was living in, and then killed himself. He did make sure her horses were safe, which is some blessing in all of this. When she was killed, no one described the incident as domestic violence, only murder-suicide. She worked with my husband, and his boss never spoke about it again. It was as if they weren’t allowed to speak about it, but I don’t think that was what is was. I think he didn’t know how to talk about it, deal with it, wrap his heart around it, and so passively coerced his coworkers to do the same. It was horrible: it festered. Just before her death, Cody’s other coworker lost his father, and his wife thinks that because of the lack of space for discussion, that her husband felt that losing his friend and coworker was more painful, was worse, made more of an impact, than the death of his own father.
This week I went to Willowind, a therapeutic horse farm that teaches people how to ride horses peacefully and provides horse-based therapy to people who need it. A friend who teaches there had saved some horsehair for me, some special ashy blonde hair from a huge dappled draught horse named Abel. His fur looks like stone and he is a giant. I am planning on taking the horsehair and combining it with a design of a horse, making my friend’s mother and sister a necklace each. I want to do something with the loss of this person that is beautiful and special just as she was.
It has been a hard time of loss and of change. Growing older is not for the faint of heart, let me tell you. I have a hormone patch on my tummy that I switch left to right twice a week and it is helping me sleep better. I hope the IUD helps other things. My skin on my face looks better, my boobs are droopier and I want to make a corset for them and be a little radical. When I walk around my garden I am amazed everyday at my plants’ abilities to grow a little bit more. I wonder what it would be like if our only stimuli were light and water?
Circling back to eyes and lies, I have made (almost done with the third anyway) three quilts about it. They are all the same size, baby sized, and have various iterations of eyes and repeated patterns that are a little spiky. One is spooky, one is sweet, one looks like a flag somehow. I wish I could ask my dad why. I wish I could call my brothers ask them over now, but I have to live up to my name. I plan to make a quilt about us, but it is a bit of a dive into a deep well, and I am not sure exactly where to start. Zak told me to talk to my fabric, and that seems like a good idea. He also said to write, so here I am.
One of the things my therapist shared with me is that she thinks I don’t exactly know how to have a real partner, as the example given my brother and I was so fraught. I agree, but it makes me sad as, for the most part, Cody is so great and I wish I was better at being a partner. I am trying very much to integrate with him, to think about him, to not be afraid to share stories with him. It is amazing to me that we have been together for 10 years and there are still stories we haven’t shared with each other. I am lucky to have him and he me but there are lots of things that I have yet to learn to be a whole person and the best version of myself. I have always been so good with kids, but adults scare me quite a bit. The brothers, though, don’t scare me at all. Why is that?
How can so many worlds exist within our minds and our hearts at the same time? How can there be so many both/ands? It is a great mystery this life of ours. Nature gives me some rhythm which is comforting, but I want to be more honest about how I feel and what I am thinking about. I am too scared I think to voice these things out loud, but I think I can write them down. Maybe I can get to a place where they come out in a more formal way, but for now, making stuff and writing stuff will have to do.
I had baby chickens in my studio for a month or two and it got all dusty, so I am off to go and dust it and get it ready to start making things again. I have about 8 power rings and an amazing pendant that are asking to be finished. When will I move on from eyes? Who knows? They are beautiful and it is interesting how many types of eyes there are and how many colors. Right now the world and my place in it feel very mysterious and spinny, but I saw this poster in the hospital today that said “Bloom Where You Are Planted” and I thought I could start there.
I miss my friends who have left the planet before me; I wish I could talk with them. Their loss shows me how precious it all is, how fast it goes by, and how important it is to notice the weird little plants and how they grow in the sunshine and the rain. It is all interconnected, everything. All of my feelings of fear and inadequacy that came from early days somehow connect to the lie my dad told that he kept so well hidden. How different things can be when we are just honest, even if it hurts in the moment. Right?
Camping in Lamoine State Park and being close enough to home to come work on projects
Planting huge amounts of squash plants and expanding the garden
The stars!!!
Time and thinking about things differently in terms of the past and of self
The birds that fly around our house and land all the time and eat all the birdseed
Life is harder than I had expected as a younger person. People are complex and all these things happen to us, and they are almost all unpredictable. It is all about how we respond: that is what matters. It is also really hard sometimes to be my best self. My mom’s neighbor, Mrs. Meryweather, is almost 91 and has taught me so much about all of this. She has taught me to garden and been an open book and a listening ear. She makes me laugh and I honestly want to be alot like her when I am that old, and even before. Her husband was equally wonderful; they are quite a pair to shine this experience of life upon, having done so much good for everyone around them, in small ways. That’s all I have to say tonight. The garden is gorgeous and I am happy to be busy with that and everything else. ❤
At night, I walk on my driveway and look up at thousands of stars, and every night I try to find the Big Dipper. When I do, I then look for Orion, the Little Dipper, and some planets. I find it soothing, and so I talk to them, making wishes for their help on this tiny floating blue dot. I know that they are so much bigger than me, and that there might be tiny floating blue dots orbiting them, and probably nobody there (if there is someone) even knows that I exist. Somehow though, every night I see them as this web of lights, connected across space, protecting me on Earth.
Life in the United States right now is very strange. I am convinced that the government is trying to make everyone afraid and divided. I think that the powers that be are using social media to do this, and there are now so many channels that can capture your attention.
I currently use Instagram and Facebook; I just deleted X because I found it mildly horrifying. I think I am about to delete Facebook, though, as I think my brain isn’t big enough for two social media accounts. It is filled with other things like plants, stars, sewing projects, and making jewelry.
Today is April 21st and it was sunny and cool today. The sun shone on the ocean and it twinkled and sparkled. Through a window, it almost looked like if you jumped in, it would be refreshing. Of course, it would actually kill you. Oh, Ocean – you’re a beast. So powerful; in reality, the most powerful thing on Earth. What a mirage of safety that ocean; birthplace of us all, so wildly different in different places. Where I grew up, in Houston, the water is always around 70-80 degrees. Here it is in the 40s right now and would make you hypothermic in minutes. And yet, this water, this cold water, is warming faster than any other body of water on Earth. All the while the climate is growing cooler, losing 1 degree of warmth over the last 11 years.
A bigger picture – a small and short life. I am about to turn 45. I just started hormone replacement therapy and now wear a tiny patch about the size of a dime on my stomach. I put one on twice a week and am hoping it makes me feel better and gives me relief from night sweats and hot flashes, brain fog, and a crazy hip pain that comes and goes. I am sure there are other things, too, but those are the ones I am most aware of. In a few years, my body will have changed again, as I transition into the second half of my short life.
I wonder why people in government would choose to do bad things, knowing how short their lives are, too, and how if they did good, more people would remember them after they’ve died. But then again, some people think they will never die; they are so afraid of its unknown.
I go back to work next week which is exciting; I am looking forward to seeing people and remembering how to do all the little things that make the gallery work. Every day I look outside waiting for leaves; still waiting. It’s ok. They are coming. There is a fox here who is eating my chickens as if she has access to take-out whenever she wants. There is also a porcupine who climbs the white pine trees at night, scratching with its big nails like a giant spiky cat. I wonder what other wild animal will come soon, the third in the series.
Writing has helped me understand that it is time to detach from the world of the internet and attach to the world of real life; plants, animals, sky, trees, making things to reflect those things back at themselves. I have many seedlings ready to put in the ground. I have already planted roses and made new flower beds for this year. The sound of the road at the end of the driveway is loud sometimes, but the land is pretty. We cleared out a streambed yesterday and planted dwarf willow trees at the stream edge. The apple trees are about to bloom, I think. I can’t wait to go swimming.
I have been listening to Radio Paradise a lot lately. It is really great; maybe you will like it too. I am off to go eat a girl dinner and watch Buffy the Vampire Slayer. Tomorrow is a new day? I think? I mean, it is. How will it feel tomorrow?
I was just outside, eating leftovers on my front porch. The house, when it was for sale, advertised said porch as a “farmer’s porch”. I am uncertain what that means. It is stained this bizarre burnt-orange UT color, which contrasts terribly with the sage green of the house. I hope to change it sometime soon. But I really hope to shingle the house soon, so that the color of the farmers porch doesn’t matter as much.
I was just talking to the stars, as I do. I was talking to my friend Mary Ann, too, about how much I miss her and wish I could talk to her. I wish I could talk to her about how weird everything got after she died and what bitches her friends were to me and to a couple of other friends. It was a mass disintegration and reorientation around a small crew of rich bitches. I guess it was inevitable. I asked the stars tonight: did I move to Maine, change my life, sell my house that I loved so much, because I hated my job and my best friend died?
The answer: not exactly. When I left Maine last time, it was like I left my art here. I still did art in Texas, but not to the same caliber or with the same intensity or regularity as I do here. Texas moves so fast and there are no seasons and there are so many highways; it is easy to just go with the flow and not examine yourself all that much. Also, in rapid fire over the course of three years, Cody’s grandma moved in with us, she died, there was a global pandemic, my dad died, and then Mary Ann died. This summer, Kate died and a few months ago, Michelle died and so did Brian. It has been terrible….let me rephrase. It has been bewildering to me. What happened that made Brian and Michelle so sad that they chose to leave us when they had taught me so much over the years? I can see Michelle smiling at me across a table, laughing, tossing her pretty blonde hair, laughing to keep from crying. Brian I can see spinning in a classroom, sharing music and asking us to think more deeply, to see connections. I remember the night he showed us True Stories when I was 15 years old, and didn’t understand it. I didn’t understand alot of what he taught us til I was in college. I have been listening to lots of Stars of the Lid and I feel that lessons are held within those songs, too….lessons to slow down and think. Think, and then do.
So Texas moved too fast, and Maine is so slow. We are changing into the fall and the air tonight is chilly and brisk and beautiful. The stars twinkle; there is a special fall-winter sharpness to the starlight that I love.
I am so thankful to have this time to investigate and think about what is going on with me. I am thankful to be able to ask myself: why am I so sad right now? Today I told my best friend that maybe I can’t be happy anywhere and he laughed and said something about how our dopamine levels are probably off or maybe we were both born in bad moods.
I think my new question is where the sadness is coming from; what is its origin story? Can I find it? I am sure I can. For so long, for years, it was my abortion that happened when I was 15 and the guilt I felt around it. I no longer see it that way; I now know that it was the right decision at the time. My new task is to examine these feelings of now and figure out where they come from. I think they have something to do with my job two years ago at Booker T Washington Elementary and working with two very challenging children. I didn’t know what to do, I am afraid that I hurt them, and I know that they hurt me, physically and mentally. I don’t even know how to describe those experiences yet, but am looking forward to working through some it with my therapist this fall. Cody says it wasn’t my fault and that I did what I was told to do and what I thought I had to do. I remember though, many moments when I just wanted to run away, to hide, to close my eyes and have it be over. Unrealistic.
I wonder what trauma response that experience touched on; it pressed a button to be sure. Lately I have been so interested in epigenetics and how sometimes our responses are not ours, but learned and coded in our genes to predispose us to bad moods, sadness, depression, anxiety, etc. I need to read about it. I am convinced there are generations of sad, scared people inside my soul. I have to tell them that they need to stay in their time period and let me explore mine.
It is the end of August – the light is sharpening in its angle and the sun is moving ever lower on the tree line each day. I did something wild and left my public school teaching job about 2 weeks ago, and here I sit, in my favorite armchair, which I share with my favorite dog, wondering.
We moved to Maine one year and two months ago. Moving cross country in your forties is no small feat and it has been harder than I thought it would be. Peoples’ lives have changed and everyone has aged. Houses are so expensive, if you can even get one. Wages, if you’re lucky, just barely keep up with the costs. There is this other aspect of middle-aged life that I am curious about, too. It is the sadness; I wonder where it comes from, and does everyone share it?
With middle age comes a lot of experiences, and I think quite a bit of loss. There are a few people that I know who have made it to their mid forties without significant losses of loved ones, but, on the whole, it seems that the decade comes with an acceptance that people you love are going to die, and sometimes, a lot of them are going to die, closely together. Some of them will be old, and so their deaths will be understandable, but some will be young, and will die so quickly that it is like whiplash when they go.
My friend Kate passed away last month, a week shy of her 50th birthday. She died after being sick for 11 months. I will write more about Kate later; she deserves a deep-dive into my many times and experiences with her and learnings from her, but suffice it to say for today, her death scared the shit out of me. I didn’t know that that could happen: that you could be diagnosed and pass away in 11 months. It cemented a decision I had already made to jump into the unknown.
Here I am. Seems a little nuts. I own a house and in a week won’t have any health insurance. Somehow, it will work out. My husband is such a sweet person but he, too, is struggling with his own middle-aged sadness. I am not sure where his comes from, because he has trouble identifying his emotions. I think he was taught at a young age that emotions were a weak enemy to be vanquished and sent away; he did that, to his current peril. He says his brain feels like mud. I worry about him and want him to have dreams again.
This place is so seasonal, and here we are, in a transition again. A great friend and I were talking today about how fall feels early, but it’s possible that it just feels that way because we spent most of our lives living in a place with no seasons (Texas). I found a red maple leaf on the driveway two days ago, and today I saw an entire red maple tree on the drive home.
Today I drove into Northeast Harbor to go to work and was struck with a feeling that I don’t feel about it the same way that I did before. I am not certain that I have lost some magic feeling, or just that my feelings on the whole are a bit muddled right now. I am worried that I might struggle to be happy anywhere, and what that means to me. I am curious about how I find peace in accepting myself. How do I keep my inherent loneliness at bay? Or, alternatively, how do I welcome it in and befriend the feeling? My husband and I were speaking about that yesterday; about being people who have always felt lonely, and yet, are together.
Does it come from my 0-3 formative experiences? Is it genes? Is it the crazy stressful harsh and intense family of origin I come from? Probably. But what do I do with this?
I am working on a book that is based on many of the writings I posted here about 10 years ago. Over the next month or so, I will be removing those posts as this blog goes in a new direction; this version of me, not the older version. So many lives in this one life, if we are lucky. One of my mentors, one of my professors from grad school, told me to write everything down. I had said that to someone else, so I have decided to take my own advice, and his, and be here now, writing and musing. I think that I am finding some kernels of truth within the annals of my mind, but it is a deep labyrinth in there and will take some time.
There was the first spring, when the roses bloomed in February – or perhaps it was even January – I have forgotten. In the front of the garden lay the double pink and the yellow roses, standing stalwart against the North wind. A late February ice storm beat them back to the ground; I almost thought they were lost, but no, roses are strong.
The second spring came similarly; why were all the storms so strong now, as if sending us a message from on high, something we were supposed to notice? There was the hail storm that felt as if someone was pouring golf-ball size hail from the roof amidst a green sky like one of a tornado. The tornado came later, and we all learned that the scariest parts of tornados is that they are invisibly powerful as they tear off your roof.
My roof remained unscathed; my friend sent me a photo of the tornado traveling just above our house on its way out of town where it wrecked a fine line of homes and barns in a path of destruction.
The changes happen slowly; perhaps we should have known this. I should have known this, as an armchair scientist and teacher of critical thinking, discernment. How could it be fast like in so many stories? It was slow.
I often wonder about princesses in carriages; gazing out the windows at the landscape. What did they think about? Were they in conflict with their material possessions in contrast with the lives of their people? My doctor said to me two weeks ago: we all had gotten way too used to all the Amazon, click-a-button and have it shit, it was time for a change.
A change is here; I feel it settling around me and I am trying to choose how to respond. I keep planting trees. I have planted six so far. My husband said last night, “I will be working in the garden on the day they blow the world apart”.
Could it be? Every day I go into a classroom and turn on lights, log into the internet, kids come in and go and get breakfast and later, lunch. We walk up a green hillside dotted with dandelions and if we have time, go into the woods to walk the trails. Children are friends, get mad at each other, stare into their phone screens, cry, laugh, and make fun of me. I love it. The children everywhere are the best part of the gig. I think every day about children in Israel, Gaza, Yemen, Ukraine, Russia, the Congo, the Sudan, etc. and I wonder do they get to walk into a classroom?
I remember teaching in Philly 12 years ago and how surprised I was at the world within the world I was then a part of. The other day there was an article about that same neighborhood in the New York Times and it made me so sad. Why? I think because I know now that it is worse than it was when I was there, and that fact is so shocking to me. I remember walking to the Dominican restaurant down the block to get lunch or to the little shops under the El to get candy or cookies for kids. There were no homeless people sick from drugs then; there were simply drug markets selling the drugs that would then populate all the blocks, all the corners. I remember taking a photo of a vacant lot with a hurricane fence, overgrown with weeds and wondering why there were no trees there.
For me, peace is coming in tiny moments and I have to actively pursue them. Dusting furniture, looking at the ocean, cooking dinner, planting a tree, refilling a bird feeder; all are tiny moments that are expanding into a greater peace. I look at the pine boughs in late afternoon sun and the way clouds look early in the morning and remember that we are all so tiny in this cosmos, and it will continue long after we are gone, whether through simple mortality or grave human error.
During the eclipse, I watched with awe the power of the Sun, and thought, without that one thing, all is lost! How amazing. We used to think that we were so powerful, before. Now we understand that nothing is certain, clear, or real. Perhaps it is time to jump into the unknown? Perhaps it is time to recognize that our hands are empty, but when we reach out to grasp another, the grasp and the hand are real.
I really wish I had some chocolate but will have to settle for a glass of red wine, a cat, and a small dog.
What is it about tragedy that really brings out the sweet tooth?
Beth left us yesterday, after a thirteen or fourteen-year battle with cancer. When I introduced Cody to her, seven years ago, he said, “THAT’s Beth?”. It was hard to believe that she had cancer. She never looked like she was sick, never, until the last ten months. There was a dwindling to be sure, but the spark was still there. She was cracking jokes with me on Saturday, and talking about visiting Italy; she was still inspired and impassioned by special cheese and offered one coffee. Even as she passed in and out of consciousness as I worked my massage-energy-love-magic, she was vitally there. She was talking til the very, very end.
I just spoke with one of our oldest, mutual friends: Meg of the terrible Russian accent and electric tooth-brush (if you know, you know). We talked about old, dark apartments and beach trips and first marriages and mysteries and how maybe there were only a few people who knew the whole story of Beth, and maybe we were lucky to be in the 4 or 5 who did. The allure, the glamour, of Beth was to have her close, in a small space, and in that space, she would reveal everything. As time progressed, despite the circle becoming larger, the reveal became less and less. Perhaps that was part of the lesson; to observe, to participate, to laugh, to travel, rather than to be truly known.
I don’t know.
Yesterday morning, just after finding out about her leaving our frame of reality, I took Oscar (the dog) out to walk the land, as is our daily, early-morning custom. I now go to work extraordinarily early (damn you, elementary school!), and we walk each morning, in the dark. It was foggy, dark, and cool. The air seemed to drip; it hung in milky shrouds. The fog clouds felt held in the air like curtains on so many windows. I said, “well, hello Beth. So you are the fog now?”.
I have written many times about my friend Meredith who died ten years ago and who I still talk to, and who still laughs at me. Beth didn’t laugh at me, but smiled, in that Beth way. I said, “well, we never made it to Maine, so I will just take you there with me and show you all the most beautiful places.”
To lose people is so difficult, for me. No more talking. No more sharing. No more confirmation in the mutually shared delusion which is our friendships with one another.
I already miss her. It has been 1.5 days. She died November 2nd, Dia de los Muertos/ All Saints Day. My dad died November 10th. My cousin’s dad died November 6th. Cody’s birthday is November 6th. The veils are thin between life and death at this time of the year.
I heretofore name this period: the Circle of Life Week. Death, birth, life, and all the parts in the middle.
Paciencia, Paciencia 