Early Morning Wishes

Getting hit with an acute cancer diagnosis in the middle of the summer when I would much rather be selling amazing jewelry, meeting people, going out to dinner, and spending time with friends, has knocked me on my butt. My days right now, usually, involve sitting like a deity in my cozy bed, leaning against various sizes and configurations of pillows, with my trusty hot water bottle by my side.

This morning, I got up and grabbed Oscar and walked the loop around our property. I am feeling the need to mark time: to mark days that are passing so fast. How is it the 30th of August? This has been going on now for almost two months; two months ago, I sat at Blundt’s Pond in Lamoine with friends and felt…funny.

Nothing feels funny right now. This is one of the challenges of the moment: brave faces and all. I love when people come to see me and it it truly is sustaining me right now; this love force that I feel from friends and family. It is so amazing; I imagine it as this big pink fluffy cloud-spiderweb with little sparkles in it everywhere. It is carrying me through this most terrifying experience. I talked to my mom last night, asking if she is going to counseling to deal with this as no one knows what is going to happen and it has only been a few years since my dad’s death. I don’t think she quite got the message, but I will try again. It feels so odd to just not know what the next week, two weeks, a month, will bring. As my friend Meg said yesterday, this cancer feels angry and it moves fast. It is scary to feel there is a being in your body, totally out of your control, messing with your everything.

I have been wanting to write more here, on a more regular basis, but have been struggling with energy and focus. I am on a lot of pain medication, too, and the brain fog of opiates is real! We were staying with Erica and Aaron this week in Boston, and he got so upset when he saw the Fentanyl patches in my box of pharmaceuticals. I had to tell him not to be scared, that it is medicine when it is used properly. Fentanyl freaks people out. My pain specialist, Patrick the Angel, just upped my dose yesterday so I will have to really work on focusing from now on.

That’s something I can ask my care team to help with: how to keep focused on Life while treating for cancer. It is much harder than I had thought, this journey. Having cancer is unlike any other sickness I have ever had. It sucks!!! You heard it here first. But, people are super nice, more nice than usual, so that is a perk.

I miss creating things as that has fallen by the wayside lately. I have to get back into that groove, too, in whatever way is manageable. One of the chemo options given to me gives people almost-permanent neuropathy, and I said no because I am an artist and I must be able to create things; it is part of who I am. My friend Ferry wrote to me and said that even as Matisse lay dying and was not able to pick up a paintbrush, he had a team of mentees cutting paper, painting, and arranging pieces right to the end, and that would be me! I have to print that text out and put it somewhere.

There is so much ephemera, so much detritus of our little lives, lingering in corners, piles on tables, the back edges of bookshelves. What makes up a life?

Wishes –

  • my edema in my legs begins to go down and it becomes more comfortable to walk
  • my appetite stays pretty strong so i can have the calories i need to stay well
  • i am my kindest, best, most authentic self with everyone i meet

Gratitudes –

  • Cody – despite some hiccups along the way, he has become the most amazing caregiver and I would be lost without him
  • Friends and family who bring food so we don’t have to think about cooking, even though I miss cooking
  • The pink spiderweb-cloud of love that surrounds me everywhere!

5am – My Life Just Changed

It is 5am on Wednesday morning. I have been up for about forty minutes, and then I just decided that some people just wake up at 5am, so why not be like those people today? Pain kept me awake alot last night, because I mis-calculated my pain medicine regimen and didn’t take a pill when I should because I didn’t want to sit up for 30 minutes waiting for it to be digested. Ho hum!!!! Here I am, at 5am.

Pain has been the most consistent feature of this cancer so far, although I don’t know if I am experiencing pain because of cancer cells, or because my lungs are surrounded by liquid that is swelling and pushing against them and against my ribcage. I am hoping for the latter, and that we can figure something out to reduce the pressure. I miss sleeping on my side, all snuggled up in bed with my husband, dog, and sometimes, a cat.

Last Friday I was diagnosed with a rare cancer called Mucinous Adenocarcinoma with Signet Ring Features. It is pretty funny since I am a jeweler, and I am experiencing the cancer cells that are shaped like pretty little rings from King Arthur’s Court. I am not sure what those little cells do in particular and need to do some more reading, but I get easily overwhelmed by Dr Google. Right now, as I write, I am moving a hot water bottle around my torso, getting relief from achiness. It works well, but I wonder if there is such a thing as a warming vest? (Just Googled – that’s a yes).

Last week I was diagnosed with cancer. I have cancer. I keep repeating that to myself and it sounds weird every time. I have cancer. I have cancer? What?

When people tell you that you have cancer, they speak really softly and nicely. They treat you kindly wherever you go (especially the pharmacists). What they don’t do is move nearly as fast as you want them to in finding a treatment plan that is going to work and make you feel better. That could happen ANY DAY, by the way. My first appointment is in two weeks. Two. Long. Weeks. What will I do with all of that time? Two weeks of waiting, two weeks of being patient.

Two weeks of writing? Two weeks of drawing? Two weeks of sewing? Two weeks of — anything. Perhaps during these doldrums of time when I am awake with achy-ness and pushing my achy bits against a hot water bottle, I can think about what I would like to do with this time. All of a sudden, I feel that time is ticking, time counts, time is fleeting.

How does one know what to do? Do I get angry? Sad? Vengeful? Wistful? Regretful? I spent the other night exploring regret and plumbing its depths. Do I do the same with the other emotions? It all feels exhausting and confusing and —- futile. But also, not. It is also eminently precious.

Goddammit.

I want to buy a new set of sheets because of all the time I am spending in bed. I ask myself: should I do this? Is this a ridiculous want? And then – why does it even matter? Because I have CANCER. Jeezum.

My life just changed.

It was dark. We had cooked lamb chops, “good lamb chops” that she had gotten from somewhere like Central Market. We cooked them on the giant, beautiful, expensive Viking range in Tina’s kitchen. Tina was out of town so she was staying in the big house and I went to stay with her. We cooked the lamb chops, 3 minutes per side and then two to finish them off, and I think we made a salad but I don’t remember. We drank light French red wine out of tiny beautiful glasses and I think it was our last dinner together.

I helped her up the stairs; she was sleeping in Tina’s room on the second floor of the old house. You had to walk up a tight, tourney staircase, so I walked her up and spent time with her in the bathroom as she got ready to go to bed. She washed her face and put lotion on her hands and brushed her teeth. She was so tiny; tinier then than she had ever been before. No hair but still that beautiful, beautiful face, that beautiful beautiful spirit that shone through everyday. I got her into bed; all the sheets were white, the walls were white, everything in that room was very light and I think she really loved sleeping in there.

The day we shaved her head, it was in that room, too; I think she had some sort of connection with that space. With how high it was above the ground, with how open and airy it was. She always loved a light-filled space. I looked in her eyes as I was sitting in bed with her. I could see the light of the lamp reflected in her eyes, and there were tiny white plates suspended in the black centers of her eyes. They almost looked like those glints of light that teenagers put in their sketches of characters when they’re first learning how to draw cartoons: these tiny points of light that are supposed to tell the viewer that their eyes are twinkling. But in this case her eyes weren’t twinkling, those little plates were matte, deep, solid somehow: they collected the light. I hadn’t noticed them before and took a while to stare at them and try to figure out what they might be.

After she went to sleep I went back downstairs and called Vonda and told her that Maryann’s eyes looked strange: that there was something floating in them. At the time I thought maybe it could be something to do with medication or cancer, I just wasn’t sure. All I knew was that there were tiny plates floating in her eyes. Later, I learned that those tiny plates were ammonia crystals floating in her eyes, teaching us that her liver was failing very quickly. She had been on chemo for so long, at that point almost 16 years, that the chemo had changed her liver from the sponge it’s supposed to be to something resembling a rock; nothing passed through, nothing was filtered out, and so the ammonia that builds up in our bodies naturally, everyday over time, had begun to build up in her body and was reflecting through her eyes.

Today I’ve been reflecting on my own current illness which also has some liver markers going on. I’ve been really thinking about Maryann and that time when her liver stopped working. Maryann is in my thoughts all the time right now; I am convinced she is around me a lot and sometimes I feel her here just watching me and taking a gaze and seeing what’s going on. But this time is different. I feel like she’s just out of reach, but she’s trying to tell me something but I don’t know what it is.

As I lay here on my bed having a day that feels like a setback, after watching a rainstorm, I’m just curious about everything. What am I supposed to learn? When I think about my dear friend Maryann, I miss her so much, but she’s right here. It’s so strange and hard to figure out.

If I could ask her and she could answer I would say what are you trying to tell me Maryann? 

Early Morning Pain Diary

It is 3:37am and I am overthinking pain and I am sitting in my sewing room and writing here, hoping it will dissipate and I can go back to sleep. It is my niece’s 15th birthday tomorrow and I am hoping to go to her celebratory breakfast. On the table beside me is a pill bottle with Oxycodone in it, the pill that works but that I don’t like; I feel it makes me edgy and nervous, and I am already edgy and nervous now.

I found something on the internet last night that said to write when one is overthinking. I find it helps, if only to track the racing thoughts and feelings of pain so that I can reflect on them later. This pain is wild: it starts in my back just below my shoulder blades and goes down near my kidneys then wraps around to the soft parts of my belly, which are swollen. I don’t think I am digesting food well: it feels stuck. I miss enjoying eating and drinking things, and I miss not being in pain every moment of every day. My legs and feet are so swollen with edema, and the swelling stretches all the way into my mid-belly now, misshaping my hips and my tummy and making me feel like I am sloshing around with extra water, 17 pounds of it at the last check. It all feels insane. How has this happened and why is it happening?

It is impossible to feel comfortable almost anywhere. It feels like my body is rebelling against me and I don’t know what it is trying to tell me except that many of its systems are angry, riled up, inflamed, shrieking! I had to leave work earlier today because my legs were so swollen and my back was hurting so much that I couldn’t concentrate and I was worried about being able to drive safely in my mental state. I hustled out the door in tears, apologizing for something that I cannot explain.

I just took one Oxycodone 5mg: I guess we are getting a play-by-play this morning. I keep wondering what this experience is supposed to teach me. I am so confused and clouded by the symptoms of pain and physical discomfort, that the only thing I can pay attention to is how much my friends love me and communicate with me and wish to help. It is so wonderful: I feel like I am in this pink cloud of love, made of all these people who love me and want me to feel better. I can’t believe there was ever a time when I worried about being alone. I have been reflecting on my post from last week when I wrote about my experience in the hospital when I was in high school. Something in my body knew something was up: I was in the ER the next day and now upon this journey which appears to be just beginning.

I worry about how I am going to pay for things now that I am not working very much. Do I call the credit card company and tell them what is happening and ask them to pause for me for a month? What about the student loan company? It seems worth a try as there is no way around how this feels: debilitating. I wish pain pills helped instantaneously and I wish they didn’t mess up my stomach. I can’t figure out if all of these medicines are helping at all. They must be? It is so confusing.

One of the other things I am able to focus on reflecting upon is how many things about health that I took for granted: walking long distances at a fast pace, munching on delicious food that made me feel good inside, sleeping through the night now that I have an Estrogen patch, and drinking a glass of rose with friends on a beautiful afternoon. All of those things are on pause. My work is on pause, and by that I mean my creative work, as I can’t focus on it and have no follow through and not much strength to do anything. It feels scary, it feels lonely, and I cannot get comfortable. My sweet husband has been doing everything, and I feel bad about that, too.

My doctor tells me I have to let go of all of those feelings and be willing to accept help. I am, I think. I mostly feel guilty about Cody having to do everything. But so far, at least to me, he is willing and not too exhausted. Right now, as I sit here typing, I am moving my body back and forth in the chair in a vain attempt to alleviate pain, to stretch something that is taught, to do anything to help. No luck.

Dear Universe, please help me move beyond this pain state, and may the surgery being done Friday be safe and go well and remove some samples that can help us understand what is going on so that my body can heal itself. This is hard, y’all. Love.

Lyme Diaries – It Might Not Be Lyme

As I sit here in my living room, lots of little birds are chirping out the back French doors, heralding another day, and the morning traffic hums from the road. I don’t mind the traffic, just the engine brakes of the trucks that barrel down a few times a day; our driveway is at the bottom of two hills, and they really go for the brake noise if they are going too fast. Almost everyone is going too fast.

Yesterday I went to the hospital for a CT scan of my abdomen, which had been ordered by my doctor when she said, on Friday, that she “officially did not like this” – this being my set of symptoms that include: whole leg edema, stomach pain, and radiating back pain. I thought I had pancreatitis, thanks to Google. Yesterday I met the amazing radiology tech, James, and he walked me through my first CT scan. My friend Nicole, who also is a radiology tech, walked me through the steps a few days earlier. I was anticipating something that was alot worse than it was. It was quick and almost painless, although the feeling of the contrast going through your body is a weird one; hot, moving, liquid-y , with a spicy taste in your mouth. After the CT scan, I stood awkwardly in the front of our small, rural hospital, trying to decide if I wanted to go to the ER or not. Nieve, gatekeeper of MDI Hospital, asked me if I had another appointment. I told her the source of my quandary. She said, “only you can make that decision. But if you want to, I will call them to come up and get you”. I nodded and started to cry, and soon after, a young nurse assistant named Zabet appeared in the elevator. Zabet is an EMT and a part-time massage therapist, and she wears a mask all the time, as if we are still in COVID times. I suppose we are.

I went to the small ER, a cluster of comfortable purple recliners in a small room divided by green and white curtains. A funny nurse named Dustin with whacky disheveled hair came over and took notes on two sides of a post-it and made me laugh. He sent Dan, the doctor, all of maybe 25 years old, seasonal doctor from U Penn, over, and we talked. Dan somehow managed to be serious without being officious: he was serious, but he listened, and he was kind. We moved into a room and I laid down on the bed. My pain was starting to creep in as I hadn’t taken anything since early in the morning, and it was now noon.

Hot Tip – if you get a CT scan and then immediately to go to the ER, they read your CT scan in about 5 minutes! Dan came into my room and said some words that were a little bit ominous but mostly supportive, “there is something wrong with you, and you aren’t crazy”. He then told me that the scan showed “a lot” of enlarged and inflamed lymph nodes, indicative of something called Lymphadenopathy. Then he said that this indicates the possibility of lymphoma.

In that moment, I time traveled to three-ish years ago, when I went to Texas Oncology with Mary Ann to see her doctor, who she loved, the doctor who always wore tall high heels and power suits even when she came to see you in the hospital at 5am. She was supposed to get chemo that day, but we had a meeting with her doctor first. It was the day when her doctor said that chemo was no longer working, which we sort of knew because her belly was very swollen and she was jaundiced. We at least knew something was off. I reached out to her to hold her hand and she slapped me, not hard. She looked at me in fear and acceptance, and said, “I can accept this”. Yesterday, I heard her speak and in my mind I also said, “I can accept this”.

There was a bright yellow chair next to my hospital bed; the yellow was the same yellow as a pair of her funny Birkenstock clogs that she used to line up in a neat row outside the door of her apartment. I said, “I wish Mary Ann was here”. My mom, who was with me in the room, said, “because of her experiences?”. I said, “No! Because she would make me laugh!”

A few hours later, I was shot full of pain medicine and had had a chest x-ray and was scheduled for another CT scan the next day. I love the radiology tech, so thought it was a great opportunity to hang with him again, and he said the same thing when he came to check in on me. We went home at around 3, and I slept for a lot of the rest of the day. They prescribed oxycodone and laxatives (what a combo!). They work for pain but they make my stomach hurt. They told me to keep taking advil and tylenol, every 6 hours (I have to take them every 4 and am hoping I am not wrecking something in the process). My doctor called at 730 and said she had shown my paperwork to her superiors, and they were elevating my case and referring me to Dana Farber, the creme-de-la-creme cancer institute in Boston. She asked if that was all right, I said, of course! And then I cried.

When I went to the ER yesterday, I didn’t even think that this was a possibility. But here we are. My poor husband is so worried, I stayed eerily calm until 24 hours had passed and then I spent a lot of the next day crying, but that is ok. My trusty steed, Oscar, never leaves my side and all the friends who I have talked with tell me how loved I am and how I am not alone. I haven’t been able to go to the gallery all week due to a combination of exhaustion, edema, and pain. I want to go to work, and I am hoping we can get some symptom management down so that I can. I miss it.

I miss not having a stomachache, and I miss my appetite. I miss red wine in the evenings, and rose in the afternoons. I miss walking at a fast pace, listening to my heart rate increase. I miss feeling like my life force is strong. When I get these things back, I swear I will never take them for granted again.

Today I go to the doctor again, and on Tuesday I get to meet a random doctor who will read the results of my scans. I hope he is as nice as everyone else has been so far. Let’s put that out there.

Love, Patience

Laughing & Clapping Her Hands

It was a second floor, garage apartment in Hyde Park, in Austin. She moved there during COVID, sometime in 2020. She moved out of a house with people who had been friends who had become controlling and strange, into an apartment with a lease facilitated by a friend who was controlling and strange, but that is another story.

It was a second floor, garage apartment and you gained access by walking up a set of wide, wooden outdoor stairs. There was a landing, a tiny deck, at the top. There were a few plant pots with tropical plants, and a neat row of plastic Birkenstock shoes: colorful. There was a screen door and an inner, wooden door that was white with a small window. In it, she lived with her turquoise furniture, bone collection, shadow boxes, chandeliers made of old sets of silver and chains, and her plants. Her kitchen was small but lovely; everything was small and lovely. There were two rooms and a bathroom and a kitchen. One room was her bedroom, bedazzled with plants and specimens and interesting rocks, a chandelier in the corner. The other was a living room with a white leather hideabed, a round vintage plastic table, low to the ground, and two old chairs covered with interesting, faded fabric. In the corner was the preserved carcass of a roseate spoonbill, suspended in flight and hanging from the ceiling. There was also an antique dentist drill, complete with spittoon, which strangely had belonged to my first husband, years ago.

It was Texas in June, summer, hot, even in the morning. I was there in the morning, and we stood out on the small deck with the colorful shoes and tropical plants, and gazed out through the giant bushes that bordered the property, through their leaves, out to live oak trees and a pond in the center of the backyard. She said, “there is something weird in my eye. Like a cloud?” “There is a cloud in your eye? Both eyes? The same?” “No, just one, like a grey cloud at the bottom of my eye”.

Later it was discovered that her cancer had spread to her brain and that was when she had to start radiation and we didn’t get to come to Maine together, which I had been wishing for, but it is ok now that it didn’t happen. Earlier that spring we had gone to Galveston and stayed in an amazing apartment right on the beach, and ate at Gaido’s. Her face was a little swollen then, and she had no hair so she either wore fabulous hats or fabulous dresses with her bald head. It was the last Easter, and we didn’t know that. When she started radiation, they made her this crazy radiation face shield that she said she would bedazzle for Halloween that year. It really would have looked cool.

I will never forget the moment that I realized that she might have brain cancer, after breast cancer, lung cancer, and bone cancer. How exactly did she keep going so long? She is, after all, a miracle. Radiation made her mind muddled and she sort of forgot some things, but the most important things she valued stayed sharp. It was in October, before Halloween and her chance to bedazzle the thermoplastic radiation cap that her doctor told her that chemo had killed her, had destroyed her liver and she would soon die. She said that normal livers were like sponges, allowing substances to pass through them, and hers was like a rock. Quickly, her abdomen filled up with fluid and ammonia, there appeared little white glints, like lenses, in her eyes, and she died a month later. She told me that I had to start working in hospice, and I just finished my training and have my first patient. To be with someone who is dying is a great gift of mercy and trust, going both ways. Today I thought of her and saw her sitting in the corner in a hot pink dress, off the shoulder, bald head, laughing and clapping her hands. What a world. What would she think if she was alive today? I suppose she would be laughing and clapping her hands, about something.

Love Rising From the Mists

When I tell you this story, there are some of you who will hear, some will listen, and some will know.

I feel that I am at the beginning of grieving the loss of my friend Beth. When I think of her lately, I can feel her hair in my hands; at the end of her life, her hair grew back as she wasn’t on chemo anymore. Her hair was brown and short and stuck up and out in places, but she still looked so cool with her yellow beanie. When she died, we realized that one of the colors was always yellow.

When we went to the doctor on October 4, her longtime doctor and trusted caretaker told her that she had lived well with cancer for a long time and that now she would not live well with cancer anymore. Her liver was failing; destroyed by chemo, it had changed from the soft sponge of bodily fluid filtration to a hard rock that didn’t let much in or out. Her tummy filled up with liquid and she felt ugly. She wasn’t, of course.

During that doctor’s visit, every experience that we had had together flashed before my mind. I thought of Port O’Connor, and Angela, apartments in Dallas, plastic jewelry, my first marriage, Cecile’s old apartment, and when she decided to marry “a rich guy”. I thought of searching for dead things and going out to Sunday Beach with Angela’s high school crush (or perhaps she was his?) and his two children. His son looked like a Troll doll and we loved him. He covered us with mud. We escaped without sunburns. I thought of walking through the Albert Memorial near Buckingham Palace, and traipsing past Embassies and through the city at night. I remembered getting dizzy in the jewelry room at the V&A and eating sandwiches on the lawn, watching naked British children bathe in the pool.

When we were told that it was the end, I remembered all the lived experiences; so much life! That is of course what I learned the most from Beth. I learned about LIFE. We once found a beautiful coffee shop with a caravan in the front garden in Port Lavaca; it was an old Victorian house and we never found it again, but that one time we found “You Can Heal Your Life” by Louise Hay and she told me about how and why Louise Hay wrote the book. On one of her last days, she said to me, “I wish my body could heal itself!”

During that last month, I spent most of my time with her massaging her and talking with her. She was in so much pain, although I suspect she didn’t admit the true force of the pain because she didn’t want to be woozy with Dilaudid. I massaged her because I wanted to keep her energy moving; keep her chi zipping around her body and soul. I spent a lot of time rubbing her perfect feet and legs and the middle of her back; this is where most of the pain was. I would also rub her face and her head and her shoulders. I would try to move the energy around, hoping it would keep her with us for longer.

One night I was staying with her and I looked at her in the half-light of the lamps. She was so tired but kept saying thank you, kept saying thank you and I love you. I went outside and called our friend Vivien. I said, “Vivien, I am worried. Her eyes look funny.” It was as if they couldn’t focus properly, or wandered when they shouldn’t. I remembered Maw Maw and how fast she slipped from us once she started. I will never forget her sleeping in that big bed with its white sheets and its golden light, falling asleep at about 7pm after I cooked us a dinner of lamb chops.

I have heard a theory of grief that I like and can attach to; the pain we feel is an alternative experience to the love we feel for the person. When my dad died last year, I felt like I was falling off a cliff into some bottomless space; there was no anchor. Slowly though, I found my footing again and realized that I must make my own anchor and remember all the tools he gave me, despite our many fraught years. This is different.

As I said above, when I think about Beth, really think about her (because I avoid it in my conscious mind sometimes), I can feel her hair in my hands, I can feel her hands, her shoulders, her tiny arms, her beautiful legs, and perfect feet. I can hear the sound of her moving in her hospital bed. I can see her eyes clouded with ammonia toxicity. I can see her moving around and saying thank you to me. I can hear her talking about cheese and visiting Italy. It is like she is becoming a part of me, of my body, as I feel all the parts of her. It is like she is right here, an ethereal version of a very real person. I think that this means that I truly love her, and she loves me, and this feeling, this painful transformation, is the process of grieving her loss. From now on, there is the Patience that lived when Beth was alive, there is the Patience during this grieving process, and there will be the Patience after.

Due to her immense grace, humor, love, and understanding, I suspect the Patience after will be a better person who is more in touch with faults and feelings, and with the preciousness of the moments.

When we went to the doctor on October 4, how would we have known she would die less than one month later, on November 2? She had lived so well, for so long. I wish I could hug her. But I can, because when I think of hugging her, I can feel her hugging me; I can feel her tiny body that cancer just ate up. I can see the light in her windows and the green of her houseplants. I can think of how great a hostess she was, and how she loved drinking dandelion tea those last few weeks to help her liver.

Beth, I miss you so much. I know you are here, in your own way. As Lilian said the other day, it’s like you are everywhere!

Griefburst

“It is only by selection, by elimination, and by emphasis that we get at the real meaning of things.”
― Georgia O’Keeffe

Life is beautiful and life is painful.

Anger is a foreign feeling to me; I am uncomfortable with it, and it makes me feel fear. The fear stems, I think, from the concern that my anger may become uncontrollable, like my dad’s was.

Lately, I have been feeling a lot of anger. I now understand why people smash up their apartments when they get upset, yell, scream, and cry. I understand the 5 year olds in my care who tear up their classrooms. I am frustrated.

For years, for ages, for my whole life almost, I blamed my dad for everything wrong that happened. When he was dying, my brother and I thought my mom would get better somehow, after he died. But she didn’t. And I didn’t (this is most important). I realized that the problems came from both of them, not from just one.

Last night I realized that one of the reasons I am so angry with my mom is that she didn’t take care of herself, didn’t protect herself, let alone her kids. I had a grief attack Monday that started innocuously enough; I thought that Cody wasn’t listening to me and I became steadily afraid of him taking advantage of me financially (this happened in my first marriage), and devolved into me not really knowing what I was saying but refusing to end an argument that wasn’t based on anything real. At 11:30, I became scared and sad. I went into the front yard and cried. The dog looked at me with a worried expression. I came inside and cried some more.

The next morning, I realized that I had been acting like my Dad; after all, we are very similar. I lost control over my emotions, and what I was saying, and let it all come out in a way that made no sense. The next afternoon, I apologized to Cody and asked him to help me stay grounded.

My grief is stemming from the loss of my father, realizations about my mother, my relationships with both my parents, the recent loss of my friend Mary Ann, and my experiences at my job. I have never hated a job before, and, in reality, I quit this job that day when the 5-year-old brought a gun to school. That was the third week of school. We are almost at Week 16. In other words, I am overloaded and I exploded. I asked Cody to help me stay grounded, stay focused, to re-align myself by asking me to come back to conversations later, and to refocus by taking time to make something. I am finding that only when I am making things do I feel almost ok.

My grief is overwhelming. Little Patience is sad and tired. Little Patience feels that my parents tried their best, but they did a lousy job. Adult Patience hates the job I worked really hard to get, not knowing what the job really was in the present state of education in Texas. Present Patience, strong though I am, is incredibly sad that I was the person who brought Mary Ann to the doctor the day she was told she was dying, the person who arrived first the morning she died and watched waves of people awkwardly enter and leave that space and witnessed my friend Von be so sad and there was nothing I could do for her. I was also the person who packed up the apartment with and for her sister Pearl when all the other friends couldn’t see past themselves enough to help. I say that I am incredibly sad because I am, not that I regret being there in any of those moments; those moments just were and are incredibly, soul-shakingly sad.

Tonight I looked up the world’s strongest animal; it is the dung beetle, the scarab. When I was weeping with the grief counselor a few days ago, she said she felt my strength in all my stories. I am trying to get there; trying to cross that bridge from sorrow to accepting that God only gives us what we can handle. I have learned that when things are really hard, that is very difficult to remember.

A Letter Written the Day After Your Funeral

She is neither pink nor pale,
And she never will be all mine;
She learned her hands in a fairy-tale,
And her mouth on a valentine.

She has more hair than she needs;
In the sun ’tis a woe to me!
And her voice is a string of colored beads,
Or steps leading into the sea.

She loves me all that she can,
And her ways to my ways resign;
But she was not made for any man,
And she never will be all mine –

Witch-Wife by Edna St. Vincent Millay

You once told me, when I described the trouble I was having staying asleep, that I should get up in the wee hours and write my memoirs. After all, that was what Patti Smith had done! I listened.

Yesterday we held the art show for you: the one you talked about every day until the day you left us. The art show had your shadowboxes and your bones and dead things, your bed, your cushions, some clothes, and most of the jewelry. None of your paintings made the cut; I am looking at one right now. I love the Fossil Hunters. I was interviewed by the videographer whilst wearing no lipstick, my Patagucci jacket, and frazzled hair. He said what I said was “great”.

Later in the day, I had had too much wine and was admiring Gary and Mary’s advanced 14-month-old baby ruling the roost like she was at least two, and we talked about past relationships and past lives and that time he saved all of us when we moved you out of the big house on the hill. Last week I learned about how the people you lived with really didn’t want you to move out; both parties the same, but different. Two locations, a similar feel. I will write my treatise on devil’s bargains later. Today is just a letter to you.

All day I thought I would come around a corner and see you laughing. It was unbelievably cold yesterday; fog descended upon the city and everything was cast in white-grey. The light was lovely. Vivian and I dressed the mannequin in a wonderful yellow-and-orange outfit; two kimonos and a yellow shirt dress and a necklace made of hundreds of charms. Behind the mannequin, in the window, hung jewels and pearls and chains, as well as the chandeliers. We made the room look like you had just left it after getting ready to go to a party.

I knew you, we knew each other, through so many different lives. Vivian knew you through more; she and I bonded during Covid over our shared moment in life. We bonded again during your death as we aimed to protect you ever still from people who sought to own parts of you, thinking your things would help fill the void. You, wiser than they, knew better.

I got to know your sister and her children over the last few weeks. She and I cried together and I became buddies with Aabah especially, laughed with Saabira, and stared into Faatina’s eyes, tearing up when I realized she will never know you because she is too little. Yesterday, I carried Aabah into the dressing room and said, “do you see Beth’s clothes?”. She nodded and said, “sometimes Mama gets very sad when she thinks about Beth”. I said, “we all do because we can’t talk to her anymore. But one day, you will wear this jewelry and that is how we will remember her”. She nodded.

Downstairs, just before we sang “So Long, Marianne”, Noah and I met and talked and he shared with me that he thought, he suspected, that you never wanted people to see the art while you were alive. We remarked on how mysterious you were in moments, how contrary. He said that he thought if you had had the show while you were still alive, you wouldn’t have come. I suspect he knows a thing or two (please see me winking to you here).

Yesterday I woke up and could barely get out of bed. It felt like the morning, at 4am on November 10th of last year, when I was woken by my mother to go to the hospital. I sat on the couch in the living room that morning and said to myself, “ok. You have to drive your mother to the hospital where her husband has just died”. I said to myself, “you can do this”. I said to myself yesterday, “you can do this”. I drank coffee and red wine and forgot to eat, but I did it. I went to sleep at 830 and woke up twelve hours later.

I said that yesterday it felt like I would walk around a corner and see you. Today it felt like I didn’t believe you are gone. I don’t believe it. You will come back, won’t you? I can talk to you again, can’t I? I know the true answers. I must remember you in my heart and mind.

Remembering you telling me you were having a heart attack (it was steroids) and speeding through tiny coastal towns until we reached a hospital, running inside, and announcing, “someone has to help me, my friend has cancer!”. The doctor was a jerk and we stole all sorts of things from the ER room, remember? Or when we walked through London trying to find strange buildings, and ate ramen and saw the city at night, and had cappuccinos under the Albert Memorial, and saw the jewelry at the V&A. Or when we went to Mexico and took mushrooms at Mimi’s mom’s ranch, drank too much cheap wine in Amanda’s trailer in Port O’Connor, cooked spaghetti and told our life stories in the dark, got stuck in sand bars, found skulls and skeletons, shopped at thrift shops, drank frozen rose on the one day you were angry at having cancer. So many more memories; the day we learned that you would die from your doctor, except we didn’t know you would die less than 4 weeks later.

I miss you. I miss you. I miss you. We had so much more to do. I will take you with me, see and feel you everywhere. The other day the sunset blew up the sky in orange and blue and I said, “Hi Beth”. I wonder if you are sitting on the couch behind me whilst I type, just out of reach; as I turn to check, will you slip away?

THE TIME you won your town the race
We chaired you through the market-place;
Man and boy stood cheering by,
And home we brought you shoulder-high.

To-day, the road all runners come,
Shoulder-high we bring you home,
And set you at your threshold down,
Townsman of a stiller town.

Smart lad, to slip betimes away
From fields where glory does not stay
And early though the laurel grows
It withers quicker than the rose.

Eyes the shady night has shut
Cannot see the record cut,
And silence sounds no worse than cheers
After earth has stopped the ears:

Now you will not swell the rout
Of lads that wore their honours out,
Runners whom renown outran
And the name died before the man.

So set, before its echoes fade,
The fleet foot on the sill of shade,
And hold to the low lintel up
The still-defended challenge-cup.

And round that early-laurelled head
Will flock to gaze the strengthless dead,
And find unwithered on its curls
The garland briefer than a girl’s.

To An Athlete Dying Young by A.E. Housman

Circle of Life Week

I really wish I had some chocolate but will have to settle for a glass of red wine, a cat, and a small dog.

What is it about tragedy that really brings out the sweet tooth?

Beth left us yesterday, after a thirteen or fourteen-year battle with cancer. When I introduced Cody to her, seven years ago, he said, “THAT’s Beth?”. It was hard to believe that she had cancer. She never looked like she was sick, never, until the last ten months. There was a dwindling to be sure, but the spark was still there. She was cracking jokes with me on Saturday, and talking about visiting Italy; she was still inspired and impassioned by special cheese and offered one coffee. Even as she passed in and out of consciousness as I worked my massage-energy-love-magic, she was vitally there. She was talking til the very, very end.

I just spoke with one of our oldest, mutual friends: Meg of the terrible Russian accent and electric tooth-brush (if you know, you know). We talked about old, dark apartments and beach trips and first marriages and mysteries and how maybe there were only a few people who knew the whole story of Beth, and maybe we were lucky to be in the 4 or 5 who did. The allure, the glamour, of Beth was to have her close, in a small space, and in that space, she would reveal everything. As time progressed, despite the circle becoming larger, the reveal became less and less. Perhaps that was part of the lesson; to observe, to participate, to laugh, to travel, rather than to be truly known.

I don’t know.

Yesterday morning, just after finding out about her leaving our frame of reality, I took Oscar (the dog) out to walk the land, as is our daily, early-morning custom. I now go to work extraordinarily early (damn you, elementary school!), and we walk each morning, in the dark. It was foggy, dark, and cool. The air seemed to drip; it hung in milky shrouds. The fog clouds felt held in the air like curtains on so many windows. I said, “well, hello Beth. So you are the fog now?”.

I have written many times about my friend Meredith who died ten years ago and who I still talk to, and who still laughs at me. Beth didn’t laugh at me, but smiled, in that Beth way. I said, “well, we never made it to Maine, so I will just take you there with me and show you all the most beautiful places.”

To lose people is so difficult, for me. No more talking. No more sharing. No more confirmation in the mutually shared delusion which is our friendships with one another.

I already miss her. It has been 1.5 days. She died November 2nd, Dia de los Muertos/ All Saints Day. My dad died November 10th. My cousin’s dad died November 6th. Cody’s birthday is November 6th. The veils are thin between life and death at this time of the year.

I heretofore name this period: the Circle of Life Week. Death, birth, life, and all the parts in the middle.

I still wish I had chocolate. Good night.