Tag Archives: family

Lyme Diaries – It Might Not Be Lyme

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As I sit here in my living room, lots of little birds are chirping out the back French doors, heralding another day, and the morning traffic hums from the road. I don’t mind the traffic, just the engine brakes of the trucks that barrel down a few times a day; our driveway is at the bottom of two hills, and they really go for the brake noise if they are going too fast. Almost everyone is going too fast.

Yesterday I went to the hospital for a CT scan of my abdomen, which had been ordered by my doctor when she said, on Friday, that she “officially did not like this” – this being my set of symptoms that include: whole leg edema, stomach pain, and radiating back pain. I thought I had pancreatitis, thanks to Google. Yesterday I met the amazing radiology tech, James, and he walked me through my first CT scan. My friend Nicole, who also is a radiology tech, walked me through the steps a few days earlier. I was anticipating something that was alot worse than it was. It was quick and almost painless, although the feeling of the contrast going through your body is a weird one; hot, moving, liquid-y , with a spicy taste in your mouth. After the CT scan, I stood awkwardly in the front of our small, rural hospital, trying to decide if I wanted to go to the ER or not. Nieve, gatekeeper of MDI Hospital, asked me if I had another appointment. I told her the source of my quandary. She said, “only you can make that decision. But if you want to, I will call them to come up and get you”. I nodded and started to cry, and soon after, a young nurse assistant named Zabet appeared in the elevator. Zabet is an EMT and a part-time massage therapist, and she wears a mask all the time, as if we are still in COVID times. I suppose we are.

I went to the small ER, a cluster of comfortable purple recliners in a small room divided by green and white curtains. A funny nurse named Dustin with whacky disheveled hair came over and took notes on two sides of a post-it and made me laugh. He sent Dan, the doctor, all of maybe 25 years old, seasonal doctor from U Penn, over, and we talked. Dan somehow managed to be serious without being officious: he was serious, but he listened, and he was kind. We moved into a room and I laid down on the bed. My pain was starting to creep in as I hadn’t taken anything since early in the morning, and it was now noon.

Hot Tip – if you get a CT scan and then immediately to go to the ER, they read your CT scan in about 5 minutes! Dan came into my room and said some words that were a little bit ominous but mostly supportive, “there is something wrong with you, and you aren’t crazy”. He then told me that the scan showed “a lot” of enlarged and inflamed lymph nodes, indicative of something called Lymphadenopathy. Then he said that this indicates the possibility of lymphoma.

In that moment, I time traveled to three-ish years ago, when I went to Texas Oncology with Mary Ann to see her doctor, who she loved, the doctor who always wore tall high heels and power suits even when she came to see you in the hospital at 5am. She was supposed to get chemo that day, but we had a meeting with her doctor first. It was the day when her doctor said that chemo was no longer working, which we sort of knew because her belly was very swollen and she was jaundiced. We at least knew something was off. I reached out to her to hold her hand and she slapped me, not hard. She looked at me in fear and acceptance, and said, “I can accept this”. Yesterday, I heard her speak and in my mind I also said, “I can accept this”.

There was a bright yellow chair next to my hospital bed; the yellow was the same yellow as a pair of her funny Birkenstock clogs that she used to line up in a neat row outside the door of her apartment. I said, “I wish Mary Ann was here”. My mom, who was with me in the room, said, “because of her experiences?”. I said, “No! Because she would make me laugh!”

A few hours later, I was shot full of pain medicine and had had a chest x-ray and was scheduled for another CT scan the next day. I love the radiology tech, so thought it was a great opportunity to hang with him again, and he said the same thing when he came to check in on me. We went home at around 3, and I slept for a lot of the rest of the day. They prescribed oxycodone and laxatives (what a combo!). They work for pain but they make my stomach hurt. They told me to keep taking advil and tylenol, every 6 hours (I have to take them every 4 and am hoping I am not wrecking something in the process). My doctor called at 730 and said she had shown my paperwork to her superiors, and they were elevating my case and referring me to Dana Farber, the creme-de-la-creme cancer institute in Boston. She asked if that was all right, I said, of course! And then I cried.

When I went to the ER yesterday, I didn’t even think that this was a possibility. But here we are. My poor husband is so worried, I stayed eerily calm until 24 hours had passed and then I spent a lot of the next day crying, but that is ok. My trusty steed, Oscar, never leaves my side and all the friends who I have talked with tell me how loved I am and how I am not alone. I haven’t been able to go to the gallery all week due to a combination of exhaustion, edema, and pain. I want to go to work, and I am hoping we can get some symptom management down so that I can. I miss it.

I miss not having a stomachache, and I miss my appetite. I miss red wine in the evenings, and rose in the afternoons. I miss walking at a fast pace, listening to my heart rate increase. I miss feeling like my life force is strong. When I get these things back, I swear I will never take them for granted again.

Today I go to the doctor again, and on Tuesday I get to meet a random doctor who will read the results of my scans. I hope he is as nice as everyone else has been so far. Let’s put that out there.

Love, Patience

Lyme Diaries – The Only Thing to Fear is Fear Itself

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Kathleen Bowman is a person who lives in our small community up here in Downeast Maine, and a few years ago, she saved my life.

A few weeks ago, she and her husband came into the gallery with some friends who were staying with them. I didn’t say hi at first as I was talking to one of the friends who was gazing out the back of the gallery at the garden; there is a beautiful, luscious garden of hostas and rhododendrons and a small pond out the back of the gallery, and it is mesmerizing. He said, “do you know my friend Kathleen?” I said and smiled, “Kathleen saved my life”. He looked at me, quizzically, and we walked to go and say hi.

Since Wednesday of last week, I have been experiencing crazy edema in my legs and an increasing sense of pain in my back and abdomen, coupled with digestive troubles. It feels as if my whole system has become locked up and like it is stopped. It is a disconcerting and painful feeling. The swelling of my legs is scarier still, and makes walking uncomfortable. It also reminds me of a very scary time in my life when this happened before, when I was 18 years old, during my senior year of high school. At the time, for months, I hid the edema under the baggie pants that were customary in the late 90s. I loosened the shoelaces in my Vans to accommodate swollen feet. In Creative Writing class, I sat on the couch under the classroom’s tiny windows. I loved that class, obviously. One day, my teacher crouched down near me to help me and friends with something, and she noticed my swollen ankles under my pants and she asked me about them and how long they had been like that. I said I didn’t know and she asked a friend to walk me to the nurse. The nurse asked me the same question, and I said a few months. (Why? I was asked a lot during that time. I was afraid I was dying, and I was a sad and lonely child, and thought maybe it was better if I just did that, quietly). My mom came to get me and I went to the doctor and they admitted me to the hospital with a blood count of 1.7 (normal is 7). I spent the next two or three days in the hospital, and it was one of the most lonely times of my whole life.

I know my mom dropped me off at the hospital; she must have. But I was alone at night, and the doctors were assholes because I was (probably) a teenage asshole to them. I watched “Boogie Nights” and didn’t sleep and wondered if I was going to die in there by myself. I was on oxygen, which was great because I could actually breathe for the first time in a while, but thought to myself, over and over, “this isn’t good”. Some friends came, but the best ones didn’t, as it was too scary. It was too scary.

When the edema showed up last week, immediately I became scared; scared of what was happening, scared of the lack of answers, scared of the fact that this entire month I have just progressed into feeling worse rather than better, and scared of having to go to the hospital. My doctor told me on Friday that she wants me to go to Bangor Hospital and not MDI because it is bigger and has more resources. Immediately I was sent into an emotional tailspin that lasted until tonight, when I caught the truth on the wind and spotted the rise of a crescent moon that I could wish upon. I wished for it to help me alleviate my own suffering; my fear of being alone in a hospital at night. At the moment when I realized it, I realized how scared my younger self was all the time, and I remembered when Kathleen saved my life.

Kathleen is an energy worker of a sort; I can’t really tell you what she does exactly. She “tunes in”, she says, and then pictures show up in your head and she asks you to describe them. Sometimes you lie on her massage table and she does something Reiki-like that isn’t Reiki, moving her hands above your body. Over time, I began to trust Kathleen, and then one day it all came clear; the young version of myself, trapped in a cold cave that was made of stone. After a while, she was coaxed to come out of the cave, and the older version of myself was standing there, tall as anything, with a cloak or wings on, or both, and wrapped her in a hug and told her she was safe and could stay out. Tonight, on the driveway, under the moon rise, I remembered that moment, and sighed and cried at my littler self, the one who was so scared and alone a lot of the time. She didn’t deserve it, and she was just a child, and also, she doesn’t need to drive the bus anymore.

All of a sudden, I knew I would be ok and I just have to figure out how to be. I smiled at the moon and thanked her for always being there, right where I need her to be. I felt relief and that a 100-lb weight had been lifted. Now, my stomach is still killing me and my legs are still swollen, but I know I won’t be swallowed up in fear.

I have been in family therapy for the last few months with my mother and brother, and I have learned to appreciate my mom a lot more than I ever have done, but I have also learned that things were more messed up than maybe I realized. I was, after all, only seeing it from my perspective. Now I see things from my brother’s and my mom’s perspective, too. So even though I felt alone and scared so much as a child, I don’t think it was anything intentional on the part of my parents. My dad was actively seeking to maintain a series of delusional stories that covered up hard truths, and my mom was running around behind him, cleaning up. Tonight our therapist asked her why she did that for so long, and my mom said she was in survival mode until she started her career as a realtor. Our therapist asked, then, a harder question, which was “do you think you were really in survival mode the whole time, up until the point when he died?”. Hard truths. How can you parent your children when you are just trying to survive yourself?

Deep thoughts on a dark night. Everyone has told me that Lyme teaches you lessons, and that part of the disease is figuring that out. I learned tonight that I don’t need to be afraid of being alone in a hospital, breathing oxygen, watching bad tv, and being afraid of dying. When we all took care of Mary Ann, we never left her alone. We watched stupid tv and put on makeup and played with Instagram filters and listened to Tupac at 5am when the morning nurses came in. We took copious notes about treatment and laughed as much as we could and made the couch look like a hospital bed so we could be close together and giggle. That’s how my hospital stay will be, if there is one. If I am to die, and we all will, I won’t be alone. I will be surrounded by people who I love and who love me.

What a gift, what lightness. Let’s not stress when there is so much beauty in the world.

Ho hum

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Here are the difficulties of mid-life. I will be 45 in a few months, and my husband will be 47. Today I was telling a story about jewelry school; a short story about a stone seller on a motorcycle with a backpack full of gemstones, and I realized how much I missed a sense of freedom.

Here I am, almost 45. I “own” a house, which means I pay a mortgage on it every month, and insurance, and taxes. I pay the same in my own life, and try to save money. I work at a friend’s gallery in the hopes of taking it over in a year or so, but all the while knowing that I am not earning what I need to earn to have the life I want. I feel like sometimes I am living in a limbo of the future: waiting. Why am I doing that when I could be actively pursuing the present? But I am doing that, too, going to work every day and enjoying it despite a greatly reduced salary. It feels unsustainable, and like something will have to shift. It’s like I want to live here, but living here is so difficult because there are so few people to sustain the place. So few good jobs, and a seasonal culture that tempts you to participate in it because you have so much time to yourself in the dark and cold days.

I don’t want to complain, and don’t think I am doing that, exactly. My husband who used to be happy and silly is hard and angry now, so upset about something I don’t understand. It’s like the last year has changed him into a stranger; someone who seeks to find something wrong with things. I seek to find things that are right, and to be ok with things if they aren’t. I get mad about the big issues, but all in all, I am happy with my daily home life. I don’t understand why he isn’t, and I don’t understand what is making him so angry.

His coworker was murdered a year and two months ago, and that has something to do with it, although I won’t know what for a long time; that kind of thing takes a long time to process. He became so emotionally entangled with his boss, a man who outwardly seems friendly and engaged, but inwardly has no capacity to talk about hard things. It is as if C feels that he is responsible for his boss’ emotions, when that is impossible. When he said he wanted to go to another, different job, the man asked him to stay repeatedly, and non-sensically, saying things like “I will make all your dreams come true!”. What does that even mean? Why would he say something like that to his employee; it is so manipulative. So is never speaking about the employee who was murdered, acknowledging her death, or offering support if support was needed.

I feel compassion and care for my husband, of course I do. In some moments he seems clear again, with a plan. Sometimes it seems like he wants the future to be exactly what he wants, and doesn’t think about what I might want, and how those things can go together. Sometimes, I wish we had never come here, and sometimes, I am thankful that all these things are coming out. Most of the time, lately, I am just very confused about the state of the big world and the state of my world, and how my world feels so different and off. I am thankful for the experience, but wish it could be different than it is.

Bah! An impossible want; to know what it is one is supposed to do with one’s life!?! How do you ever know?

Long Lost Family

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I have been watching a BBC programme (English spelling!) called “Long Lost Family”, and I have been crying alot, watching all the stories about people finding long lost family members; sisters, brothers, children, and parents.

Right now I am feeling super sad about it all, about my dad’s choice to hide his first children, the twins, from everyone except his immediate family, who also chose to hide them. It just feels sad and weird, compounded by how far away we are from our entire family, and that they are probably the reason for that. The information does fill a hole, but maybe the hole is a little bit deeper than I had thought.

I don’t know what to think about this all, today. Sometimes I am so happy about it. I wish so much we could take a train and meet each other and walk around or get dinner or a beer or something. I somehow want to see how tall they are, especially since we match each other in heights – Mark and I at 6 feet and Pat and Carew at 6 foot 4. 14 years and a world apart – and yet, sort of together finally.

I think that lately I have been so mad at a dead person, and also so sad for him and wanting to hug him all at the same time, just to tell him that he didn’t need to do this. I wonder how a parent couldn’t want to see their children and know who they become. The Universe gave me a great gift when I was 34 when I got River as a son after so many years of fraught feelings around having children and being in relationships in general. Cody is my favorite person and I am so lucky to be able to love him and have him in my life, and River is a major bonus, as is his family. I just don’t understand why you would give that up? I am sure that some part of my Dad decided with Carew and I that he wouldn’t give us up, despite being really challenged in the parenting and adulting department.

I don’t know what else to say. It has been grey and rainy here for a couple of days, but I know that spring is around the corner. This winter has been long and full of so much, so many learnings and questions, curiosities. I just can’t get my head around it, this human condition. Sometimes people make these crazy decisions, and what is so crazy is that, in those moments, those are the best decisions of each of these people. They are doing their best, even if their best seems, to us, later, as unnecessary, bad, or hurtful. Blah! I don’t know what to say.

I will say that I am thankful that I have brothers and that knowing them completes a hole in my life that had been there for so long. I didn’t know what or who they were, but I knew that they existed, maybe for my whole life. What a world!

Free Weight

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For awhile, I looked in the mirror and I didn’t recognize myself; who was that, staring back at me with little wrinkles everywhere, eyelids that are changing, a worried brow, gray hair? For a while, I knew that it was, indeed me, but a me that somehow had changed. Now, they have come together and I see the same old face in my current new face.

This blog has existed for about ten years, and so much has happened in those interim ten years. For a long time, I was good at writing regularly, at night, by myself, in my house. But then ten years ago I got together with the man I am now married to, and my evening behaviors changed. To me, writing is a solitary act. I really don’t like to do it when anyone is home, even with the door closed. I somehow feel that it is important not to be interrupted when channeling whatever this is.

Here I am today, writing stream of consciousness style, so please bear with me. Today is my friend Mary Ann’s birthday and she would have been 46. She died two years ago. She visits a lot, but we can’t talk anymore, and that is what I miss the most. I also miss talking to my dad, as we did during his last few years of life. We had had a lifetime of fights (since I was a teenager, so half a lifetime I guess), that we gave up sometime after I got married and we moved Maw Maw into our house after she had a stroke. Taking care of her made me realize that our lives are very finite and we can leave the planet oh so quickly. I vowed to never talk to my dad about anything important ever again, and we began talking all the time.

Today I am thinking about his first, secret-to-us family in England. What is weird about this iteration of thinking, after now knowing for about 2 months, is that I feel the most compassion for him that I have ever felt. I never could feel this compassion for him in life because he never told us about this thing, this majorly big issue in his life that explains so much. When I asked my aunts about him in 2017 and they told me they wouldn’t tell me, I thought all kinds of things.

I thought he had gotten someone pregnant and his parents were really mad. (Partially true)

I thought maybe he had gotten drunk and wrecked a car and his parents were really mad. (No)

I thought he had fought in Vietnam and had PTSD. (Not true; now we aren’t sure if he was ever over there, but he said he was, so……)

Basically all of the things I thought it could be were way more colorful and interesting than a breakup of a marriage in its infancy, and leaving the infants that came along with the young marriage behind, never to see them again. It’s just so damn sad.

Lately, sometimes, I get so sad. It’s like something is literally hanging around my neck with a weight. What’s in the weight? I don’t even know. Is it just me? Am I a melancholy baby after all? It would seem so. I used to be more fun though, I think. Why is this weight so heavy and how do I lift it? I don’t want to feel this sad and anxious all the time; emotions so overwhelming and a general feeling of no one liking me. And coupled with that, a crazy desire to keep everyone happy so that I don’t say things when I am angry or sad or irritated or when I need to. Those two things must be intertwined; some ouroboros that is.

Earlier I was talking to a friend of mine who lives in Texas and we were talking about how reflective the 40s is. This decade is wild and whack. I don’t understand how the shift is perhaps a bit more money in the bank, or perhaps an investment (house) or something, and then people start to die? Right now, I think this trade off, this change, this phase, level-up, or whatever you want to call it, is bullshit.

I also accept that everyone dies and literally they have to die at some point. It just seems that it is weirdly becoming a regular part of life, and I am having to adjust to it and “deal” with it, and try to understand it and be at peace with it. One of the things I learned when Maw Maw lived with us is that death doesn’t scare me. I think I knew this, as I when I got very sick in high school and didn’t die, I think I chose to no longer be frightened of it and be open to it all the time. When Maw Maw was dying, a day that I haven’t written about yet, it was very weird and mysterious. Watching someone leave the planet “is NOT like in the movies” (I said this over and over at that time).

Why can I not seem to get out of thinking about Maw Maw, my Dad, Mary Ann, and my friend Kate (who died this past summer). I am shaken by Kate’s death; I always thought she’d end up working for the federal government and be interviewed on 60 Minutes or something. Mary Ann I just miss. My Dad I just miss. Those two were my phone people; I spoke to them almost every day. I haven’t had my phone people in over 2 years, and I miss them. Maw Maw I miss, but she makes me smile and laugh. She was old and she was ready to roll out. I just miss her, again, because it would be fun if she was here and we could watch a movie. They just seem to live in my mind right now; I am not sure what to do about that.

When I think of my Dad right now I just wish I could tell him that it’s ok, we know, and we just wish he would have told us because everything is fine. It happened so long ago, before he had even met my mom, and I know that no matter what happened, it was not an easy decision and I am sure he didn’t want to make it. My Aunt Margaret told me about his white wedding, and how beautiful it was, everyone in white dresses and my Aunt Helen was the flower girl. She told me she has photos somewhere and I so hope she can find them. I have a hard time imagining my dad as a 26 year old person. How was he ever that young?

I wish I could tell him that it’s ok because it is. It explains so much, almost everything. It explains why we came to the US, and why his family didn’t know that. It explains, perhaps, why we fought so much. Did he feel guilty every time he looked at me? Did he feel guilty all the time, ashamed, anxious, afraid, and did he transform those feelings into rage and anger? (Seems so). It seems so sad, what a waste of time and energy. My mom said that she would have welcomed the boys into the family, but who knows if they would have wanted that, or their mom. I know that with Cody’s situation with his baby mama, she was (metaphorically) driving the bus and made it extremely hard for him to see or have partial custody of his son. It took many thousands of dollars and hours of time to secure those rights. But, he did it, he chose to fight for them. Why didn’t my dad fight for his boys?

I can only imagine how sad he must have been, and that is how I have compassion for him. I wonder if he knew it wasn’t working when they were living in Scotland and found out they were pregnant. I wonder where they moved after that. Did they own their house or rent it? Was it near my grandparents or her parents or neither? How much was he working then, and doing what? I know that he was a cigarette salesman at one point down in Devon/Cornwall, but was that before when he first got back from Australia, or between Outward Bound and Noble Denton?

It is such a drag that I probably won’t know the answers to many of these questions. The tragedy of this story, or at least one of the big ones, is that the boys’ mum died the same year that he did. She died still with his last name, after all that time.

I feel better after writing a bit. Please bear with me as this all comes pouring out. I am so scared to let it, but it feels like a weight lifted when I do.

Grief, again. Grabbing hold of my heart and squeezing it in a vice. Some people describe grief as being shaken by a wild animal, but mine is a cold squeeze and I feel like I can’t scream out even though I want to. If I scream, someone might get mad at me for being too dramatic or sensitive or overly-emotional. If I scream, people might know and worry or be mad at me for making noises in quiet places. I said this to my therapist two weeks ago and just remembered it:

“If I look at it, then I may be sad forever.” Where does that come from? When I say it outloud or read it, I know that it is some part of my brain trying to trick me. I can’t be sad forever, and how would letting this out make me sadder? Perhaps it’s the weight? It doesn’t want to let go?

Indirectly

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My Dad was an incredible storyteller; when he was dying, nurses at the hospital would ask my brother and I if the stories he had told them earlier were true. One asked, “did he really jump out of planes?”. After he died, we received card after card after card telling stories or sharing condolences about the loss of him, and the loss of his stories.

My brother and I always said that we knew that parts of the stories were true, but we never knew how much, or if some of them were real. Turns out that he spoke around a core truth, a center story, about which we only learned three years after his death.

Before he died, he said to my brother and I a great many things. Just before he went into a coma, in which he laid for 9 days, he told both of us individually that he wasn’t afraid to die and he knew this was the next step in his life, in his journey. This conversation, to both of us, was comforting and I think it was to him, too. He repeatedly told us that we had to take care of our mother.

One of the common themes of his stories was his time in Outward Bound, both teaching in Devon and helping boys of under-resourced backgrounds who had gotten into trouble, known as “Borstal Boys”, and trying to get another school started with little success. We always assumed the school he wanted to start was also in Devon. He spoke about it and told us that it was his biggest regret that he didn’t just try harder, that he was sure that it would have worked eventually, but that he felt that he had to earn more money, and so he eventually abandoned it.

It turns out that there was a story at the core of this story, and probably, at the core of all the others, too. It turns out that he was married in 1966, had two twin boys in 1967, and somehow left that relationship and his sons by 1971. He never told my mom this, or my brother, or I, and his family kept this secret until this last October.

This has been so hard for me to write about, despite peoples’ suggestions that it will help. For some reason, writing about this has been difficult because it scares me. My brother and I found our half-brothers (we think) and last week, sent them handwritten letters asking them to speak with us. They are 58, we are 44, and 40. Writing the letters was hard, and putting them in the mail required a lot of energy and focus, Why? I cannot tell you, although all I know right now is that I feel that knowing this story, and sending the letters, put something in motion that I now can’t take back.

When my Dad got together with their mother he was around 24 years old. I can’t even imagine my Dad as a 24 year old. For some reason, he was always old. Like my brother says, he will be 50 in our minds forever. But he was 24, and then he got married when he was 26, and had two boys when he was 27. Just like my husband Cody did. Just like so many people did. And then 4 years later, he no longer had them, had left them, and had asked his whole family to keep the secret, which they did.

For about a month, I was really mad about this. Sometimes, I still am. Right now, though, I think – why? And I know that there must have been a reason why. Tragical romance? Raising twins as babies gone awry? Lack of involvement in child raising on the part of my dad who was a rig worker and was 6 weeks on, 6 weeks off? Parents didn’t like him? All of the above and so much more?

This is the first time I am writing about this. I keep having emotional outbursts that are inappropriate. I keep thinking about my Dad. I have so much compassion for him now; more so than I ever have. I also want to shake him sometimes and I wish I could talk to him. Somehow I feel that this is the core issue that the whole family rotated around, even though we didn’t know what it was. Years ago, in 2017, I asked my aunts (his sisters) if there had been something that had happened that stopped him from having a close relationship with his family, and especially his mother. They told me it wasn’t their story to tell. Now I understand that, and they were right to tell my mom first. But, I feel somehow ok, good, accepting, forgiving, and curious about how I knew something was off.

For years, my heart has ached at my lack of family. I always wondered why we moved to Texas in 1983, and why we never went back to England. Now I know. I feel like I knew about my brothers even before I knew who they were or what they were to me. It’s as if their absence was a presence in my heart, all along.

I hope to write more about this and explore how it is changing my perspective toward myself and my dad and my place in the world. It is wild. I just turned 44, and I have decided I will live to 88. This means that my life just started its second half; just started over again. Right now I feel so sad sometimes, so angry, so confused; what am I supposed to be doing? Where am I supposed to be? But I suppose Destiny interjected the need for me to know the answer to the big question. The answer is: two brothers, twins, born in January, fellow Capricorns. I hope they want to speak to us.

Ridikkulus ! Or, Why No Lie Is Worth Telling

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It is not everyday that you have a major life revelation, something that stitches some theories into the facts column of your memories, forever cementing but also altering your life. Last night, my mom sat myself, my brother, and my husband down to “talk about something for an hour” she said. Three hours later, we had learned that:

  • My father was married a very long time ago to a first wife, sometime around 1965
  • My father and his wife had twin boys who were born on 7 January 1967
  • My father’s first wife “couldn’t cope” with raising twins (on her own? with an unhelpful husband who “worked alot”? with perhaps post-partum depression that was undiagnosed?), so she moved back in with her mother and
  • They never spoke again

My dad’s family, who knew his first wife, who had been to his wedding, and who knew his twin sons, were asked to honor the request of no contact, which they did for 54 years, until a few weeks ago when my aunt told my mom she knew something but she also knew it would be hurtful. My mom asked her to tell her, regardless, and here we are.

For years I have wondered what precipitating event caused my father to lose contact with his family, for after this, he barely spoke to them for 15 years. In fact, my aunt didn’t even know that I was born in England, one hour or less away from where she had her second daughter, born one month before me.

In 2017, I went to England for my cousin Sally’s wedding in the Lake District. It was beautiful and I can’t wait to go there again. Whilst driving through London with Aunt #1, I asked her, “did something happen between my dad and his parents? Like an argument? Did he do something to disappoint them or something? And that’s why you all stopped talking?” She said, “It is not my story to tell. You have to ask your father.” Whilst walking through a town in the Lakes with Aunt #2, I asked her the same question, and she gave me the same answer.

In 2009, when I was getting divorced from my first husband, my parents came to see me. I was confused as we weren’t especially close at the time. Now, looking back on it, I suspect my dad felt that me going through a divorce would be very difficult. I know my mom was worried about me, but she said that they felt I was handling everything very well (later writings will go into how good of an actress I am – Oscar caliber). In my laundry room, my mom let slip that my dad had been married before and that “divorce isn’t that hard, eh Michael?”. This is when I learned he had been married before for about 5-6 years. When I asked him why he had never said this before, he said he didn’t think it was important. I asked him, “what, are you going to tell me that we have half brothers or sisters somewhere?” he said a definite “No.” He lied.

Why did he lie? To me? To my mom? To my brother? What happened and why?

Tragically, his first wife (first and second wives were both named Susan, oddly), died about one year after he did, in 2022. He was born in 1939, she in 1943. He died in 2021, she in 2022. He had his twins when he was 28 years old. I cannot even imagine what my dad was like/looked like/acted like when he was 28. My husband had his son when he was 26 and I remember what he looked like: an adultish person.

Thankfully, all of my dad’s siblings have told us we can ask them anything now that the cat is out of the bag. But sadly, both people involved are dead. Strangely, she kept Blythe as her last name all these years, as have done the boys. Why? If it was such a split, wouldn’t it make sense to change names or……….something.

Did he ever pay her any money to help raise them? Were they ever in contact? Why did the split even happen in the first place? Apparently my grandmother took care of the twins when she could. She always loved babies and was great with children. She also had to live with this condition of giving up her first two grandchildren, and, her daughters say, fought it until my granddad insisted. I cannot imagine how painful that must have been for her, for him, for his first wife. It just seems like so much pain, and I will never know the reason why, probably.

When I asked my dear Uncle Denys why this happened, why we left the UK and our entire family, when we were having tea after Sally’s wedding, he said, “it was a different time”. Maybe it was? What does that mean? Did he know?

This opens up so many questions. Is this the reason that we moved to the States, so that he would never have to deal with it? It seems so. Why did he never tell my mom? Why did she never insist on meeting his family before they were married?

Because, oh yes, my mom never pushed on meeting his family. He said they didn’t want to meet her, and she accepted that, despite that his 5 brothers and sisters would have loved to meet her, and did, about 15 years after his first divorce, when he was married to his third wife and living in Houston, Texas.

I have written about this here before, but sometime around 1970 my dad lost touch with his family and regained contact with them around 1985, after we had emigrated to the United States. My granddad was ill with progressive health problems, and we came to England and met the family for the first time. The aunt who orchestrated this meeting is the same that spilled the beans to my mom two weeks ago, She is truly amazing and a creature of love and acceptance. I love her so much. After the first English meeting, my grandparents came to Texas and saw us there. My granddad died very soon thereafter, in 1989, of cancer and heart problems. He had been a nuclear chemist and the exposure to chemicals damaged his body. My grandmother was diagnosed with cancer in the 1960s, looked around at her 6 children and her scientist husband who didn’t pay bills but knew how to (mostly) build an atom bomb, and said to her doctor, “I can’t die!” and didn’t until 1994.

What is bothering me so much about this story is the lie at the center of it; a lie that, to me, is wholly unnecessary. Why would he leave behind his children? What about his wife? Did he love her? Did she break his heart? Did he break hers? Yes, yes, and yes? We could have had two older brothers. (We think we have found them. One looks just like him, with eyes just like me and my brother’s. The other looks like my granddad, to a T. Round, bald head, round nose, nice smile.)

28. When I was 28, I was getting divorced from my first husband. I owned a house in Austin. Did he own a house in England? He always told me he sold his boat to buy his first house with my mom. Is that true? The trick of this lie is that the two people who were really involved are now dead.

This experience, which right now is only 24 hours old, has taught me that is never worth it to lie. Never. What would have happened if he had just told my mom about all of this, like we would all expect to have happen between two people committing to each other in marriage? Would anything have changed? Only one, to be certain. The lie wouldn’t have been there. My uncle used to stay with them, he says. My grandmother helped with the babies. My aunt was living with my grandparents when they split and she remembers everything.

My dad was always best in a group, at a party. In person, he was very challenging. He was avoidant, afraid of commitment, and angry. When he was confronted, he became so angry that he was scary. I suppose that guaranteed that no one would get close. He drank to excess, creating health problems for himself and his family. He died three years ago, and during the last year of his life, became very emotional. He cried alot. He said to me once, “I used to be a great man” or something similar. I told him, “you ARE a great man, Daddy”. Despite talking to my brother and I a lot over those last two months especially, and we did talk, a lot, he never told us about this. Was this his wound? Was it the reason that everything else happened? It seems so. By avoiding three people, or perhaps four (apparently my dad’s first wife’s mom did not like him and did not want them to get married), he dragged in 5 brothers and sisters and their partners, his second wife, friends(?), my mom, my brother and me. All drawn into a web of sadness that was never soothed or understood, just forgiven, because that is what you do when people die.

This is just the first time I will write about this. I had to get something down, some sort of recording of how it feels to know an answer, perhaps the answer, to the question that I have been asking about my father for years. I knew something had happened. I thought it was something in Vietnam. Right now I don’t even know if he was ever there. I don’t know very much about him at all. Today, I feel like I know more and less, good and bad. My takeaway from 43 years on the planet is that it is both/and yes/no good/bad all the time, together. They are mixed, hand-in-hand, like dough, chocolate, or clay.

In some ways, it feels like a circle has been closed, soldered shut with fire and time and communication, finally. I wish I could hug my dad and tell him I am so sorry that he felt that this was the best decision he could make at that time, and I also feel like shaking my dad by the shoulders and shouting, “WHAT IN THE ACTUAL FUCK?”. It is both. I understand the sadness and shame, but the lie? The behavior? My brother and I hope to reach our brothers and we hope that they want to speak with us. Beyond that, no expectations. Goddammit, Daddy.

p.s. I hope you know the reference in the title today. I think it is the appropriate spell for today. I wish I could shout it at my dad.

Son, can you play me a memory?

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What makes me so afraid? Who is the one who is scared?

I have been thinking a lot about genetics and memories; how many of our memories are ours? I don’t mean remembering your kindergarten teacher, but rather, the memories that trigger our responses to things. How do I deal with change? How do I deal with control and the fear of the future?

Please forgive me as I wax poetic a bit here; it may be too many episodes of Northern Exposure, or too many trees, the way the light looks on the water each day, or the way the light itself is changing as we make our way out of summer. Hard to say.

I want to make this big change in my life. I want to quit my teaching job and get a new job and become an art therapist, even though I am already an art therapist. I want to learn more about it so that I can do it more meaningfully. I want to volunteer/work for hospice and talk to people who are dying, and their families. I want to work with kids who are on the autism spectrum. I want to work with people who have cancer, brain injuries, who are old and who are young.

In about a week or so I have to make this decision and pull the trigger of stability and quit the job that the school district so graciously gave me back in April or May. I feel sort of guilty about this, but not really. I feel that all of us who serve others understand the spirit of a calling; something that tugs at your heartstrings so hard you’d be a fool to not pay attention.

Part and parcel of this desire, though, is this fear. It is REAL. It is fierce. It says: what if you end up under a bridge? What if you can’t find a job? What if you can’t pay your mortgage? What if you disappoint everyone? Isn’t that interesting?

Last night was my mom’s 73rd birthday and I concocted a whole plan for her birthday: fancy dinner out at a fancy restaurant. Within about 20 minutes I recognized that this was all about ME and not anyone else. My mom was answering texts about real estate on her phone, River and Maddy were talking about whatever it was on their phones, Cody looked uncomfortable, my brother and I were just sitting trying to make it all tolerable and workable. We went to the Claremont, which is so pretty, but we stood out like sore thumbs in our lack of pink wealthy Hawaiian print and Indian block print dresses. Cody felt that everyone was looking at him; I knew better. They wanted us to look at them. Dinner was delicious if not exciting, but it was insanely expensive and so, yet again, I learn a lesson by it literally being charged to my bank account. $410 for 6 people seems, even for Maine in July, a bit much.

WHAT AN IDIOT – I said to myself all night, not sleeping. I said it all day, too.

I am about to go to bed now, and try to let it go. An expensive lesson, but a good one. My mom doesn’t care. We could have gone out for ice cream. I so desperately want her to be happy that I spent $410 on that hope; in vain. She isn’t happy, she doesn’t want fun. She is who she is.

Gah.

OK so maybe I am not an idiot, perhaps I am a deluded hopeful person (not much difference there). My mom is definitely at the forefront of my mind’s eye when I think of quitting my job and starting something totally new. I want her visage to go away. I don’t think it’s really real.

So who is afraid? Is my grandma? My grandpa? My father? My nana? I dedicate the next few days to that exploratory mission.

Good night.

A 2024 New Year Love Letter

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Maxfield Parrish “Hilltop Farm, Winter” 1949 – he just ***knows*** winter light so well

[I am loving this new album by Andre 3000]

January.

Today I spent the day watching snow fall, steadily, increasingly fast, then slowing down to a peaceful stop around sunset. I took my dog out for a walk in the half-light; everything was cast in blue and so quiet, as it is after it snows.

This is a new year, one that comes after many hard ones. There has been so much LIFE in these last four or five years. Starting with taking care of my husband’s grandma in the summer of 2019 followed by a global pandemic, Masters degrees, the death of my father, of a dear friend who was more like a brother-father than a friend, and the passing of one of my best friends. Add to the mix, changing jobs, confronting a school system that I found morally injurious, navigating the first few years of marriage to a wonderful guy, getting a sweet little dog, selling our amazing magical house, and moving here to Maine.

Maine is calm and quiet; every night I look out the window at stars (as long as it isn’t cloudy) that hover above the tree line. We have no visible neighbors here, but do hear the sounds of cars passing on the highway. Our house is peaceful and warm and cozy and laid out so well; we each have space to be and to do, and I love the kitchen.

Lately, I have been thinking about my thought processes and where I am in my life. I have been asking myself: am I happy? Will I be happy? Is this happiness? What is this all about, anyway? I have watched so many people that I love go through so much during these pandemic years. We are all changed. But we would be even if there hadn’t been COVID. Perhaps it has helped a lot of us get somewhere? I know it has helped me.

For most of my life I have struggled with staying in one place. My father was a ramblin’ man to be sure; he was a traveler who worked internationally and never wanted to be in one place, I don’t think. I have said many times that I am glad that he had my brother and I, but that he wasn’t really cut out for family life. Even when my brother and I were alive and growing up, it seemed to be painful for him to be with us and be a father who helped our mother with all the things that are necessary for a life in America at the time they were trying it out. When he died, I sat with his body in the hospital and held his hand wondering where he was. I knew that he was somewhere fabulous, somewhere in the world of memory that he lived in. I am sure he was drinking really good booze and eating really good food while wearing a fancy pair of shoes and a glittering wristwatch. He had such good taste in things.

I think I inherited so much from my dad; my temperament, my intelligence, my fear of staying, my fear of disappointing everyone. For many years I was worried that if someone knew my inner persona that they would know I wasn’t worth knowing; poor little girl inherited that from somewhere. It was an idea plucked from the ether of family and history and had/has no bearing on reality. I came to that conclusion after many years of therapy and talking with friends. I don’t think my dad ever felt he could do that. I inherited my anxiety from him, my emotional temper that (luckily) very rarely shows up. With him, he wore it on his sleeve and it was almost ever-present. Last semester, when I was trying to decide to leave a job that was not right for me for so many reasons, I was consumed by worry and I immediately thought of him and wondered if that was why he seemed so angry all the time. I feel relief that my journey with these feelings has been different.

I have realized since starting my new job last week that I do not want a stressful job, maybe ever again. It is wonderful to be in a positive environment where things are easy going and most everyone is happy enough. I go at 7:30 and I come home at 3. The ease of it is helping me process the lingering stressors and confusions that still swirl in my mind; it is also helping me figure out what I want my future to look like.

Choosing stability when one has grown up without it is very challenging; I inherently am distrustful of myself and my decisions, despite how they look from the outside. I can look at myself rationally and say: you have done a very good job in being a grown up. I can look at myself emotionally and say: but it doesn’t feel right (the problem being I don’t know what does). In times like this I am so thankful for my husband and his family and their constancy with each other and their normal behavior with each other and with me. They have showed me what it can be like. So have my friends and their parents.

The snow fell and I was sewing a quilt for my son and meditating on trust. Trusting myself, trusting others, trusting the process, trusting that life will unfold. I was reading a new year meditation today, one of those goofy ones on Instagram that flash by your eyes in an instant but nevertheless make a mark. It asked: what if what you wish for comes true? What if it all works out? My stomach hurts when I think of things this way as there are deep-seated core cells of my body that don’t trust that these things could ever be true, despite all the hard evidence to the contrary. As I was sewing his baby blanket into the back side of his quilt, I thought about how he is in college now, and starting his life, and I remembered when I was his age, starting mine. It was so long ago now: 25 years ago. A quarter of a century ago, I was a baby grown-up.

In Maine right now I am a long-term substitute teacher who makes quilts and who is brainstorming a line of jewelry for 2024. I am helping my friend with an online quilt class she is hosting which is incredible and is using my Masters degree, which makes me happy. I am cooking in a kitchen that is so well set-up for me. I am dreaming in a king-size bed with a dog, two cats, and a sweet husband, who, I am sure, is going through the same wending thought processes as me.

My goals for the year are to stay in the present and to worry less. I hope I can do this, with the help of more therapy, which I just re-started with a therapist I know and trust who I can see in person. I hope to focus on my own creativity and developing my skills at sharing it with others as well as building a career integrating technology with the arts and using the internet as a meaningful teaching avenue for myself and others. I want to keep the slow pace. I want to spend time with friends and let people in to who I am without being so scared all the time. I want to stay grateful and do what I want to do because I want to take advantage of every moment that I have on this beautiful earth. So many times I think Mary Ann is sitting in the back seat of my car as I drive around, or is standing behind me when I am doing something. Sometimes I feel her poking me gently in the right shoulder blade, reminding me to BE ALIVE, BE ALIVE, BE ALIVE!

Everything is brand new, and yet familiar. Happy New Year.

Maxfield Parrish, “Birches in Winter”, 1946

Slowly

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The Sailing Ship – Bishop Charles Henry Brent

What is dying?
I am standing on the seashore.
A ship sails to the morning breeze and starts for the ocean.
She is an object and I stand watching her
Till at last she fades from the horizon,
And someone at my side says, “She is gone!” Gone where?
Gone from my sight, that is all;
She is just as large in the masts, hull and spars as she was when I saw her,
And just as able to bear her load of living freight to its destination.
The diminished size and total loss of sight is in me, not in her;
And just at the moment when someone at my side says, “She is gone”,
There are others who are watching her coming,
And other voices take up a glad shout,
“There she comes” – and that is dying.