Taking Care of a Dying Person

I remember when I first met MawMaw, she told me to keep Cody on the straight and narrow. To be honest, she kind of scared me: this tiny, old person with a perm was clearly no woman to challenge. Over the years, though, I learned that tough exterior covered an extremely sweet person who felt herself to be much worse than ever could be a reality. She has given me and Cody so much, and so, when the time was right, we moved her in to our tiny, old house, and here she remains, in the slow and strange process of leaving the planet.

Last week was hard; it started with conversations with her dead sister Tootsie about Steve (her also dead husband) going out to the chicken coop in Bossier City only to discover a snake, would you imagine? We advanced to an admission of being afraid and a night of nightmares and everyone being awake trying to coax MawMaw back to our reality from one of her own. She sleeps with a little boy but doesn’t know who he is because she has never seen him. But, the last two days have been clear and almost normal. Her “symptoms” if you can call them that follow the pattern written out in the hospice folder. Perhaps we are within days, or weeks, perhaps not. No one seems to know anything specific about this mystery we call dying.

Taking care of a dying woman who cannot walk and who is bedridden while teaching 8th graders and trying to complete my first semester of grad school is very hard, and everything is suffering. I try to not take it all so personally: I feel defeated and grumpy all the time. I feel overwhelmed and sad and worried and anxious; I have a short temper with my students. I hope that will change, for their sake and mine. It is not their fault, after all, that they are teenagers.

She tells me funny stories sometimes, and sometimes I do nice things like give her a facial with lovely oils to soothe her “onion-skin” as her nurse calls it; paper-thin, almost translucent, and apt to dry out and tear if we aren’t careful. She still has her sense of humor and she winks at me when she is being wicked. I appreciate that very much. When she gets upset I ask her to tell me things about her children when they were little and about Bill (her husband) and when they got married, and how he built their house for $6000. Many times now, she doesn’t remember the details.

I have been watching her sleep and she reminds me of a puppy right now: moving, twitching, frowning and smiling as she remembers…something. I feel she is reckoning with her life at the moment, when both awake and asleep. She said the other day she wished she had been a better mother.

This process is slow, and it is also fast. Sometimes it feels like longer than 4 months, and then I realize how short 4 months actually is. So much has changed for us; our marriage is better for this experience as we actually have learned both to communicate and to take care of/appreciate the other one. We say “thank you” more and give each other breaks when things are hard: walk away even, or just kiss one another or hold each other’s hand rather than trying to prove something. These are good things.

As I type this, the north wind is blowing around the house, as it likes to do on some winter nights. I wonder how much longer she is with us, and if the wind will take her away one evening. I know the wind is a woman, and she a harbinger of change, especially in winter. We all talked about death the other day; we are all on the same page. We will be all right when it happens. Like she says, she has to get to heaven to be with her mama again, and her sisters, her brother, and her husband.

Such a mystery this life.

Do not stand at my grave and weep,
I am not there, I do not sleep.
I am in a thousand winds that blow,
I am the softly falling snow.
I am the gentle showers of rain,
I am the fields of ripening grain.
I am in the morning hush,
I am in the graceful rush
Of beautiful birds in circling flight,
I am the starshine of the night.
I am in the flowers that bloom,
I am in a quiet room.
I am in the birds that sing,
I am in each lovely thing.
Do not stand at my grave and cry,
I am not there. I do not die.

– Mary Elizabeth Frye

A Japanese Puzzle Box

“Yes: I am a dreamer. For a dreamer is one who can only find his way by moonlight, and his punishment is that he sees the dawn before the rest of the world.” – Oscar Wilde

catphoto

 

A Japanese puzzle box

When I was a young girl of nineteen, I took a trip with my family to England, to move my Grandmother out of her old house and into an assisted living house. She was so excited because she never had to cook again, and I was so excited to listen to old stories and go through old things with her. Her family: uncles and cousins and a brother, traveled on old steamships across the world from the port of Liverpool, always bringing back magical presents from Asia, Africa and Australia to the women sitting and waiting back home.

During that trip, my grandma gave me many things: an old porcelain shell-shaped ashtray, a Depression glass vase, a pressed-glass cigarette container, and a Japanese puzzle box. The box has no discernible openings, no drawers, and is inlaid on one side with birds and flowers, and the other with a mountain scene. Only she knew that if you slide the top panel to the right and the bottom to the left, that you discovered a hidden compartment: a drawer with a tiny button handle, in which you could store whatever you wanted.

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Let us think about dreams for a second, a minute, an hour, a day. Dreams are, for me, what guide my decisions. My heart bends in one direction or another, tied fast to dreams of what life could be, what it could look like if I could realize the wishes and hopes in my mind. My gut tells me what feels right; deep in my body come the yeses and the nos that dictate what I know to be right and true for me.

My dreams, since moving to Maine over one year ago, are to realize, finally, my deepest wishes and desires. My dreams involve turning the looking glass inward and looking at myself, deep into my hazel-green eyes, and allowing my happiness and sadness to flow through me. My dreams are to let go of the control, of the planned future, and instead step into a place where I move through life doing the things that I want to do versus what will make others happy.

Realizing dreams is scary, and painful, and involves a hefty dose of selfishness. Realizing dreams also involves the acknowledgement that others may ask of you a justification, an explanation of behaviors or choices that do not make sense because they break with past patterns. Realizing dreams involves sitting down and having tea with yourself, and saying that the little person inside, the child if you will, has many unexpressed desires and missing pieces that must be delicately crafted.

Maybe life is like a puzzle: those long and sometimes dull games you play with old, wizened aunts who love horse-racing and overly-sugared cakes on rainy days when there is nothing else to do. Maybe you seek the four corners, laying them out carefully on the table, oriented correctly, and after that, you find the edge pieces, and build the frame. And maybe you never really finish the puzzle, but have to be content with searching through the pile of pieces for the next section that will come clear: the flowers, or the sky and its clouds. Maybe the puzzle pieces sit on a small table in the dining room for years and years, and every month or so you find a new piece that fits. And maybe you finish the puzzle, but maybe not. Perhaps the goal of the game is to be happy looking at the tiny pieces and wondering how they all fit together. These are the dreams, I think.

Sweet dreams.

puzzle purse 8x8 front