Early Morning Pain Diary

It is 3:37am and I am overthinking pain and I am sitting in my sewing room and writing here, hoping it will dissipate and I can go back to sleep. It is my niece’s 15th birthday tomorrow and I am hoping to go to her celebratory breakfast. On the table beside me is a pill bottle with Oxycodone in it, the pill that works but that I don’t like; I feel it makes me edgy and nervous, and I am already edgy and nervous now.

I found something on the internet last night that said to write when one is overthinking. I find it helps, if only to track the racing thoughts and feelings of pain so that I can reflect on them later. This pain is wild: it starts in my back just below my shoulder blades and goes down near my kidneys then wraps around to the soft parts of my belly, which are swollen. I don’t think I am digesting food well: it feels stuck. I miss enjoying eating and drinking things, and I miss not being in pain every moment of every day. My legs and feet are so swollen with edema, and the swelling stretches all the way into my mid-belly now, misshaping my hips and my tummy and making me feel like I am sloshing around with extra water, 17 pounds of it at the last check. It all feels insane. How has this happened and why is it happening?

It is impossible to feel comfortable almost anywhere. It feels like my body is rebelling against me and I don’t know what it is trying to tell me except that many of its systems are angry, riled up, inflamed, shrieking! I had to leave work earlier today because my legs were so swollen and my back was hurting so much that I couldn’t concentrate and I was worried about being able to drive safely in my mental state. I hustled out the door in tears, apologizing for something that I cannot explain.

I just took one Oxycodone 5mg: I guess we are getting a play-by-play this morning. I keep wondering what this experience is supposed to teach me. I am so confused and clouded by the symptoms of pain and physical discomfort, that the only thing I can pay attention to is how much my friends love me and communicate with me and wish to help. It is so wonderful: I feel like I am in this pink cloud of love, made of all these people who love me and want me to feel better. I can’t believe there was ever a time when I worried about being alone. I have been reflecting on my post from last week when I wrote about my experience in the hospital when I was in high school. Something in my body knew something was up: I was in the ER the next day and now upon this journey which appears to be just beginning.

I worry about how I am going to pay for things now that I am not working very much. Do I call the credit card company and tell them what is happening and ask them to pause for me for a month? What about the student loan company? It seems worth a try as there is no way around how this feels: debilitating. I wish pain pills helped instantaneously and I wish they didn’t mess up my stomach. I can’t figure out if all of these medicines are helping at all. They must be? It is so confusing.

One of the other things I am able to focus on reflecting upon is how many things about health that I took for granted: walking long distances at a fast pace, munching on delicious food that made me feel good inside, sleeping through the night now that I have an Estrogen patch, and drinking a glass of rose with friends on a beautiful afternoon. All of those things are on pause. My work is on pause, and by that I mean my creative work, as I can’t focus on it and have no follow through and not much strength to do anything. It feels scary, it feels lonely, and I cannot get comfortable. My sweet husband has been doing everything, and I feel bad about that, too.

My doctor tells me I have to let go of all of those feelings and be willing to accept help. I am, I think. I mostly feel guilty about Cody having to do everything. But so far, at least to me, he is willing and not too exhausted. Right now, as I sit here typing, I am moving my body back and forth in the chair in a vain attempt to alleviate pain, to stretch something that is taught, to do anything to help. No luck.

Dear Universe, please help me move beyond this pain state, and may the surgery being done Friday be safe and go well and remove some samples that can help us understand what is going on so that my body can heal itself. This is hard, y’all. Love.

Lyme Diaries – The Only Thing to Fear is Fear Itself

Kathleen Bowman is a person who lives in our small community up here in Downeast Maine, and a few years ago, she saved my life.

A few weeks ago, she and her husband came into the gallery with some friends who were staying with them. I didn’t say hi at first as I was talking to one of the friends who was gazing out the back of the gallery at the garden; there is a beautiful, luscious garden of hostas and rhododendrons and a small pond out the back of the gallery, and it is mesmerizing. He said, “do you know my friend Kathleen?” I said and smiled, “Kathleen saved my life”. He looked at me, quizzically, and we walked to go and say hi.

Since Wednesday of last week, I have been experiencing crazy edema in my legs and an increasing sense of pain in my back and abdomen, coupled with digestive troubles. It feels as if my whole system has become locked up and like it is stopped. It is a disconcerting and painful feeling. The swelling of my legs is scarier still, and makes walking uncomfortable. It also reminds me of a very scary time in my life when this happened before, when I was 18 years old, during my senior year of high school. At the time, for months, I hid the edema under the baggie pants that were customary in the late 90s. I loosened the shoelaces in my Vans to accommodate swollen feet. In Creative Writing class, I sat on the couch under the classroom’s tiny windows. I loved that class, obviously. One day, my teacher crouched down near me to help me and friends with something, and she noticed my swollen ankles under my pants and she asked me about them and how long they had been like that. I said I didn’t know and she asked a friend to walk me to the nurse. The nurse asked me the same question, and I said a few months. (Why? I was asked a lot during that time. I was afraid I was dying, and I was a sad and lonely child, and thought maybe it was better if I just did that, quietly). My mom came to get me and I went to the doctor and they admitted me to the hospital with a blood count of 1.7 (normal is 7). I spent the next two or three days in the hospital, and it was one of the most lonely times of my whole life.

I know my mom dropped me off at the hospital; she must have. But I was alone at night, and the doctors were assholes because I was (probably) a teenage asshole to them. I watched “Boogie Nights” and didn’t sleep and wondered if I was going to die in there by myself. I was on oxygen, which was great because I could actually breathe for the first time in a while, but thought to myself, over and over, “this isn’t good”. Some friends came, but the best ones didn’t, as it was too scary. It was too scary.

When the edema showed up last week, immediately I became scared; scared of what was happening, scared of the lack of answers, scared of the fact that this entire month I have just progressed into feeling worse rather than better, and scared of having to go to the hospital. My doctor told me on Friday that she wants me to go to Bangor Hospital and not MDI because it is bigger and has more resources. Immediately I was sent into an emotional tailspin that lasted until tonight, when I caught the truth on the wind and spotted the rise of a crescent moon that I could wish upon. I wished for it to help me alleviate my own suffering; my fear of being alone in a hospital at night. At the moment when I realized it, I realized how scared my younger self was all the time, and I remembered when Kathleen saved my life.

Kathleen is an energy worker of a sort; I can’t really tell you what she does exactly. She “tunes in”, she says, and then pictures show up in your head and she asks you to describe them. Sometimes you lie on her massage table and she does something Reiki-like that isn’t Reiki, moving her hands above your body. Over time, I began to trust Kathleen, and then one day it all came clear; the young version of myself, trapped in a cold cave that was made of stone. After a while, she was coaxed to come out of the cave, and the older version of myself was standing there, tall as anything, with a cloak or wings on, or both, and wrapped her in a hug and told her she was safe and could stay out. Tonight, on the driveway, under the moon rise, I remembered that moment, and sighed and cried at my littler self, the one who was so scared and alone a lot of the time. She didn’t deserve it, and she was just a child, and also, she doesn’t need to drive the bus anymore.

All of a sudden, I knew I would be ok and I just have to figure out how to be. I smiled at the moon and thanked her for always being there, right where I need her to be. I felt relief and that a 100-lb weight had been lifted. Now, my stomach is still killing me and my legs are still swollen, but I know I won’t be swallowed up in fear.

I have been in family therapy for the last few months with my mother and brother, and I have learned to appreciate my mom a lot more than I ever have done, but I have also learned that things were more messed up than maybe I realized. I was, after all, only seeing it from my perspective. Now I see things from my brother’s and my mom’s perspective, too. So even though I felt alone and scared so much as a child, I don’t think it was anything intentional on the part of my parents. My dad was actively seeking to maintain a series of delusional stories that covered up hard truths, and my mom was running around behind him, cleaning up. Tonight our therapist asked her why she did that for so long, and my mom said she was in survival mode until she started her career as a realtor. Our therapist asked, then, a harder question, which was “do you think you were really in survival mode the whole time, up until the point when he died?”. Hard truths. How can you parent your children when you are just trying to survive yourself?

Deep thoughts on a dark night. Everyone has told me that Lyme teaches you lessons, and that part of the disease is figuring that out. I learned tonight that I don’t need to be afraid of being alone in a hospital, breathing oxygen, watching bad tv, and being afraid of dying. When we all took care of Mary Ann, we never left her alone. We watched stupid tv and put on makeup and played with Instagram filters and listened to Tupac at 5am when the morning nurses came in. We took copious notes about treatment and laughed as much as we could and made the couch look like a hospital bed so we could be close together and giggle. That’s how my hospital stay will be, if there is one. If I am to die, and we all will, I won’t be alone. I will be surrounded by people who I love and who love me.

What a gift, what lightness. Let’s not stress when there is so much beauty in the world.

Up Out of a Deep Well

Waiting.

Time.

Circumstance.

Change.

The decade of the 40s has been interesting because I have experienced many moments of clear reflection. I like to think of them as plateaus of understanding; it’s as if my mind’s eye is climbing mesa after mesa, seeing clearly out to a horizon that, beforehand, I could not see.

Maine has always been a place where I am an artist, first. In Texas, I was always a teacher, first, and had been for years. I am beginning to appreciate the practicality of that choice of vocation, as i am really struggling here with earning a lot less than what I earned in Texas. But, I digress. As an artist, first, I am embarking on an adventure of making more work, finishing a writing project, and hoping to take over a friend’s longstanding artistic business. It is a time of big leaps, and I am waiting for my confidence to catch up.

The deep well, I think, is a series of experiences that have emboldened an already highly-developed struggle with self-confidence. People tell me this struggle isn’t obvious to others, but to people who know me really well, it is clear. The deep well of circumstances like: teaching under-resourced students for almost twenty years, moving a lot from place to place, being afraid of commitment and how that impacts decision-making, focusing more on achievement over joy and balance and contentment, the death of my dad, the death of one of my best friends, teaching during the pandemic, discovering two half-brothers at the age of 45, and landing again in a place that I love but is very challenging to make a good living, have all resulted in this moment of clarity. Ah ha! Here I am, after all these years.

I find it hard to internalize that we are where we are because of everything that came before. But, to me, standing on tonight’s metaphysical mesa and staring at a new horizon, this explanation is the only one that makes sense. What now must be is a decision as to what to do next. I feel in some ways that I am taking huge risks in waiting and seeing if the jewelry store dream becomes reality; most of these risks are financial and right now, financial risks seem bad. On the other hand, with our country in the throes of the changes it is experiencing, maybe this is the time to grab the dreams by the hands and jump. I don’t know? I know what I want, which is to own or co-own the jewelry store, be able to save money and pay for health insurance without total panic every month, take a month or two off in the winter and go somewhere nice and sunny, to be able to buy the land around us and run a campground for people in the summer, to pay off our house within 15 years; all of these are the dreams.

But the waiting, the realizing, the digging oneself out of a series of experiences to find meaning within them; it is hard and it is drudgery sometimes, and sometimes it is joyful, like tonight.

I am still sick with anaplasmosis and Lyme disease. I think that something about these illnesses forces me to think about a lot of things while I am sick; they are thoughtful illnesses, to be sure. This experience reminds me of when I got sick my senior year of high school and could do little else but be sick and hope I would get better sometime. I spent a lot of time sitting on the back porch, thinking about the meaning of life. I think I have some sort of understanding of the meaning of life, for now anyway, but I am thinking about a lot of other things. I think about the preciousness of life and time, how fast it all goes, what I want the next ten years to look like and be like, and what I can do to make the world a better place, a little at a time. It is an active time, this thinking time.

Last year, one year ago yesterday, the world lost an amazing person in Kate Shuster. She was a mentor and a friend and a shero and an inspiration, and she is very missed. She left behind lots of memories, photos, and writings, but her death impacted me so much and especially reminded me of the precious nature of our time on Earth. She made a mark, a series of them, in fact, and she left Earth very quickly after being diagnosed with pancreatic cancer. When she died last year, I went and sat on the edge of the ocean and thought about her, and Mary Ann, and Ken, and John, and Meredith; all the friends who I had lost before I wanted them to go. Sometimes I see them or hear them or feel them around the edges of this reality and I wonder what they think or want us to see or understand. I guess we will never know that, and just have to keep on doing the best we can.

Free Weight

For awhile, I looked in the mirror and I didn’t recognize myself; who was that, staring back at me with little wrinkles everywhere, eyelids that are changing, a worried brow, gray hair? For a while, I knew that it was, indeed me, but a me that somehow had changed. Now, they have come together and I see the same old face in my current new face.

This blog has existed for about ten years, and so much has happened in those interim ten years. For a long time, I was good at writing regularly, at night, by myself, in my house. But then ten years ago I got together with the man I am now married to, and my evening behaviors changed. To me, writing is a solitary act. I really don’t like to do it when anyone is home, even with the door closed. I somehow feel that it is important not to be interrupted when channeling whatever this is.

Here I am today, writing stream of consciousness style, so please bear with me. Today is my friend Mary Ann’s birthday and she would have been 46. She died two years ago. She visits a lot, but we can’t talk anymore, and that is what I miss the most. I also miss talking to my dad, as we did during his last few years of life. We had had a lifetime of fights (since I was a teenager, so half a lifetime I guess), that we gave up sometime after I got married and we moved Maw Maw into our house after she had a stroke. Taking care of her made me realize that our lives are very finite and we can leave the planet oh so quickly. I vowed to never talk to my dad about anything important ever again, and we began talking all the time.

Today I am thinking about his first, secret-to-us family in England. What is weird about this iteration of thinking, after now knowing for about 2 months, is that I feel the most compassion for him that I have ever felt. I never could feel this compassion for him in life because he never told us about this thing, this majorly big issue in his life that explains so much. When I asked my aunts about him in 2017 and they told me they wouldn’t tell me, I thought all kinds of things.

I thought he had gotten someone pregnant and his parents were really mad. (Partially true)

I thought maybe he had gotten drunk and wrecked a car and his parents were really mad. (No)

I thought he had fought in Vietnam and had PTSD. (Not true; now we aren’t sure if he was ever over there, but he said he was, so……)

Basically all of the things I thought it could be were way more colorful and interesting than a breakup of a marriage in its infancy, and leaving the infants that came along with the young marriage behind, never to see them again. It’s just so damn sad.

Lately, sometimes, I get so sad. It’s like something is literally hanging around my neck with a weight. What’s in the weight? I don’t even know. Is it just me? Am I a melancholy baby after all? It would seem so. I used to be more fun though, I think. Why is this weight so heavy and how do I lift it? I don’t want to feel this sad and anxious all the time; emotions so overwhelming and a general feeling of no one liking me. And coupled with that, a crazy desire to keep everyone happy so that I don’t say things when I am angry or sad or irritated or when I need to. Those two things must be intertwined; some ouroboros that is.

Earlier I was talking to a friend of mine who lives in Texas and we were talking about how reflective the 40s is. This decade is wild and whack. I don’t understand how the shift is perhaps a bit more money in the bank, or perhaps an investment (house) or something, and then people start to die? Right now, I think this trade off, this change, this phase, level-up, or whatever you want to call it, is bullshit.

I also accept that everyone dies and literally they have to die at some point. It just seems that it is weirdly becoming a regular part of life, and I am having to adjust to it and “deal” with it, and try to understand it and be at peace with it. One of the things I learned when Maw Maw lived with us is that death doesn’t scare me. I think I knew this, as I when I got very sick in high school and didn’t die, I think I chose to no longer be frightened of it and be open to it all the time. When Maw Maw was dying, a day that I haven’t written about yet, it was very weird and mysterious. Watching someone leave the planet “is NOT like in the movies” (I said this over and over at that time).

Why can I not seem to get out of thinking about Maw Maw, my Dad, Mary Ann, and my friend Kate (who died this past summer). I am shaken by Kate’s death; I always thought she’d end up working for the federal government and be interviewed on 60 Minutes or something. Mary Ann I just miss. My Dad I just miss. Those two were my phone people; I spoke to them almost every day. I haven’t had my phone people in over 2 years, and I miss them. Maw Maw I miss, but she makes me smile and laugh. She was old and she was ready to roll out. I just miss her, again, because it would be fun if she was here and we could watch a movie. They just seem to live in my mind right now; I am not sure what to do about that.

When I think of my Dad right now I just wish I could tell him that it’s ok, we know, and we just wish he would have told us because everything is fine. It happened so long ago, before he had even met my mom, and I know that no matter what happened, it was not an easy decision and I am sure he didn’t want to make it. My Aunt Margaret told me about his white wedding, and how beautiful it was, everyone in white dresses and my Aunt Helen was the flower girl. She told me she has photos somewhere and I so hope she can find them. I have a hard time imagining my dad as a 26 year old person. How was he ever that young?

I wish I could tell him that it’s ok because it is. It explains so much, almost everything. It explains why we came to the US, and why his family didn’t know that. It explains, perhaps, why we fought so much. Did he feel guilty every time he looked at me? Did he feel guilty all the time, ashamed, anxious, afraid, and did he transform those feelings into rage and anger? (Seems so). It seems so sad, what a waste of time and energy. My mom said that she would have welcomed the boys into the family, but who knows if they would have wanted that, or their mom. I know that with Cody’s situation with his baby mama, she was (metaphorically) driving the bus and made it extremely hard for him to see or have partial custody of his son. It took many thousands of dollars and hours of time to secure those rights. But, he did it, he chose to fight for them. Why didn’t my dad fight for his boys?

I can only imagine how sad he must have been, and that is how I have compassion for him. I wonder if he knew it wasn’t working when they were living in Scotland and found out they were pregnant. I wonder where they moved after that. Did they own their house or rent it? Was it near my grandparents or her parents or neither? How much was he working then, and doing what? I know that he was a cigarette salesman at one point down in Devon/Cornwall, but was that before when he first got back from Australia, or between Outward Bound and Noble Denton?

It is such a drag that I probably won’t know the answers to many of these questions. The tragedy of this story, or at least one of the big ones, is that the boys’ mum died the same year that he did. She died still with his last name, after all that time.

I feel better after writing a bit. Please bear with me as this all comes pouring out. I am so scared to let it, but it feels like a weight lifted when I do.

Grief, again. Grabbing hold of my heart and squeezing it in a vice. Some people describe grief as being shaken by a wild animal, but mine is a cold squeeze and I feel like I can’t scream out even though I want to. If I scream, someone might get mad at me for being too dramatic or sensitive or overly-emotional. If I scream, people might know and worry or be mad at me for making noises in quiet places. I said this to my therapist two weeks ago and just remembered it:

“If I look at it, then I may be sad forever.” Where does that come from? When I say it outloud or read it, I know that it is some part of my brain trying to trick me. I can’t be sad forever, and how would letting this out make me sadder? Perhaps it’s the weight? It doesn’t want to let go?

Magnifying Glass

There is an old, leather-wrapped Jefferson Magnifier that years ago I stole from my parents and use it to read words and letters largely from time to time. As the moments pass and we get closer to the inauguration of the 47th President, I keep thinking about magnification, this time of ideas, rather than random passages in old books.

I wonder if the new strategy is to employ loyalists who won’t say much against, well, anything, and to wear down the resolve of those of us who still believe in parts of the government as good, functional, useful, purposeful, and necessary for our mutual survival as a country. I am consistently reminded, also, of the Batman movie in which Christian Bale is Batman and Heath Ledger is The Joker, and Alfred reminds Bruce Wayne that “some men just want to watch the world burn”. It could be that, too, I suppose.

I wonder how does someone advocating for the slashing-and-burning of the FBI impact me? Does it? What if the Department of Education is dismantled to pre-1979 laws. Would they go after those laws, too? What about IDEA? What about school lunch programs?

I wonder.

When I pull back on this philosophical magnifying glass, I see that this is both a detail and a long-term strategy that started way back when I was little and Reagan was president. So many big ideas had been codified into law during the 1940s-1980, and his administration wasn’t able to do much about it. But what about this one? 40 years later and a whole lot more vocal and indignant.

I hope that the federal government is not changed to a point where we can’t recognize it. I don’t know what that would mean for most people, especially young people and poor people and unhoused people and immigrant people. This last week’s news was emotionally draining for me, but I am trying to read the news about once per day. I do want to know about as much as the media will report. I hope they continue being brave and sharing details. Without them, I am not sure what might happen. I do remember that there were no press briefings during his last administration. Will that happen again?

This all so strange to experience, this shift in the United States. The shift is so dramatic as to be alienating and exciting but not in a happy way. The other side I think probably feels the same way except they are excited in a good way. This is so tiring; I hate that I am feeling so tired by all of it and I feel like my writing is not as clear as normal. But that is ok. Like one of my best friends said today, “it is all so fleeting”.

Circle of Life Week

I really wish I had some chocolate but will have to settle for a glass of red wine, a cat, and a small dog.

What is it about tragedy that really brings out the sweet tooth?

Beth left us yesterday, after a thirteen or fourteen-year battle with cancer. When I introduced Cody to her, seven years ago, he said, “THAT’s Beth?”. It was hard to believe that she had cancer. She never looked like she was sick, never, until the last ten months. There was a dwindling to be sure, but the spark was still there. She was cracking jokes with me on Saturday, and talking about visiting Italy; she was still inspired and impassioned by special cheese and offered one coffee. Even as she passed in and out of consciousness as I worked my massage-energy-love-magic, she was vitally there. She was talking til the very, very end.

I just spoke with one of our oldest, mutual friends: Meg of the terrible Russian accent and electric tooth-brush (if you know, you know). We talked about old, dark apartments and beach trips and first marriages and mysteries and how maybe there were only a few people who knew the whole story of Beth, and maybe we were lucky to be in the 4 or 5 who did. The allure, the glamour, of Beth was to have her close, in a small space, and in that space, she would reveal everything. As time progressed, despite the circle becoming larger, the reveal became less and less. Perhaps that was part of the lesson; to observe, to participate, to laugh, to travel, rather than to be truly known.

I don’t know.

Yesterday morning, just after finding out about her leaving our frame of reality, I took Oscar (the dog) out to walk the land, as is our daily, early-morning custom. I now go to work extraordinarily early (damn you, elementary school!), and we walk each morning, in the dark. It was foggy, dark, and cool. The air seemed to drip; it hung in milky shrouds. The fog clouds felt held in the air like curtains on so many windows. I said, “well, hello Beth. So you are the fog now?”.

I have written many times about my friend Meredith who died ten years ago and who I still talk to, and who still laughs at me. Beth didn’t laugh at me, but smiled, in that Beth way. I said, “well, we never made it to Maine, so I will just take you there with me and show you all the most beautiful places.”

To lose people is so difficult, for me. No more talking. No more sharing. No more confirmation in the mutually shared delusion which is our friendships with one another.

I already miss her. It has been 1.5 days. She died November 2nd, Dia de los Muertos/ All Saints Day. My dad died November 10th. My cousin’s dad died November 6th. Cody’s birthday is November 6th. The veils are thin between life and death at this time of the year.

I heretofore name this period: the Circle of Life Week. Death, birth, life, and all the parts in the middle.

I still wish I had chocolate. Good night.

Dark Apartments, Stingrays & Terrible Shoes

There were noises the other night: creaks and movements in the dark. These were noises that I hadn’t heard for three years since I had last taken care of a loved one in the night. They were the sounds of someone moving around who recently had a normal bed that makes no creaks and the strange plastic sounds of an airbed with a human being moving upon it.

I met her in a dark apartment in Dallas, a hundred years and 7 lifetimes ago. By that I mean 21 years, when we were 21 and 22 years old. She made plastic jewelry in her oven in her own dark apartment, but it was in the dark apartment of our friend Ashley that we met. Ashley knew about makeup and exfoliation and hung giant pieces of fabric from her ceiling. Her boyfriend who would become her first husband barely spoke to me and never spoke to Beth. She talked about the smell of the plastic jewelry as it baked in the oven and how it was probably toxic. Toxic, but geometric; it was clear in spots and opaque in others. Squares danced upon rectangles intermingled with other shapes, too.

Later, it was raining in July at the Tarpon Motel in Port O’Connor, Texas. I was in this crazy moment of rejecting a corporate career; upon reflection, I just realized that was the last time I hated my job. But I digress. It was raining. Raining, raining. Beth sat on the second queen bed in the room. She was wearing a very fashionable hat and was very quiet. She was very quiet a lot then. We went, during a break in the rain, to drink cheap beer on the dock of the marina next door with Billy’s mom, Lynn. Lynn was great; she was a strong woman and was so loving to her kids. She was great until she wasn’t; like all of us.

During that trip, we were assured that Ashley’s brother knew how to navigate the shallow waters of the gulf and could take us to Matagorda Island to a friend’s cabin. Adam ran aground within minutes and we were stuck trying to get an outboard out of the mud, all the while conscious of possible stingrays beneath our feet. When we made it to the island, it was unbelievably hot and the cabin just had screens over the windows. The screens had holes in them, or the door did, or something, because the heat and the mosquitoes were unbearable and we abandoned ship quite soon to shimmy back in the water and the mud to the mainland.

Then there was the time we went searching for a building like the Pompidou Centre in London. I was wearing terrible shoes; a trait that Beth constantly chides me for. Terrible shoes! They were beautiful vintage men’s loafers that were the complete opposite of what one should wear while walking through London. We had lunch at the Barbican and found the building, and my damn feet hurt, and we ate vegan ice cream in a strange downtown coffee shop in the finance district and took the Tube during rush hour. She was sick, even then, and even during those days was having reactions to chemo that made her unable to do much because she was so itchy and having a hard time sleeping. We did, however, walk around London at night and eat ramen in Mayfair and Indian food near Buckingham Palace and have cappuccinos (I think) at the Albert Memorial after seeing a show at the Serpentine with Alberto and Reuben.

I just spent the evening in my workshop, applying gold leaf to a lantern I have been working on for a friend for years. We played on the wood it is made out of when it was a tree. For years, we have played on this tree. I took Matthew’s graduation photos on it. About ten years ago, it finally died after one last winter storm. I culled its bark and have hauled it around with me since. I sat tonight, applying gold leaf and thinking about how much life changes, and how losing people is so difficult. Losing people is hard for me because I can’t talk with them anymore, I can’t hear their voices anymore, and I worry about losing my memories of them. I think: do I want to be in a world without them? The answer is of course, yes, but it is a sharper world; the visions are more dear, colorful, passionate, and valuable. The big things are bigger and the little things fade into complete unimportance.

So it goes.

I will miss you.

On a Late Evening

Last night I was up at 2am dreading the reality of the drudgery of the every day.

Lately, I am up almost every night around 2-3am, running scenarios around in circles in my mind; scenarios that I think I handle well enough, but nevertheless fill me with worry, dread, concern, and questions.

I read a poem yesterday all about being awake at 3am, knowing one’s family is asleep and at peace, and sitting in a quiet house, writing. So here I am.

My friend Beth is slipping away; she is leaving us. Since she and I went to the doctor about three weeks ago, she has begun to change, alter, shift, move, and become something else. Sometimes she is totally normal, sometimes she makes little sense, sometimes she is up, and sometimes she is away. Such is this mystery we call death. Her liver is failing due to years of chemotherapy; cancer will not kill her, cancer medicine will.

A year ago, I was up in Maine, wandering the streets of Bar Harbor in tears, trying to figure out how to feel about losing a father who was both a giant thorn in my side and a guiding light in my perception of reality. Turns out, he was both at the same time, always. A year ago, I caught myself in the sunlight of autumn in Maine, in an alley, with ice cream. I was stuck, you see, in the light and in the shadow.

On the night that he died, I looked at all the photos of him and I from when I was a baby until recent days. That night I felt like I had fallen over a cliff’s edge and was falling into a space with no bottom. He died at about 4am, alone, as made sense for him. We had been with him for the preceding 9 days when he fought leaving this mortal coil tooth and nail and lived for those 9 days with no water or food.

Beth is different. Her passing is more peaceful, and more supported by friends and caretakers. Each day she slips away from us more and more; her body failing, her spirit partially here, partially somewhere. She ebbs and flows like the river, like the tide. Today we talked and she told me that my massages make her feel better, she asked me if I would leave Cody for a wealthier husband (I think this was a joke), and she asked me if I was going to a pottery festival. She told me that my bracelet, currently in an art show, is better than she had thought it would be. She told me that her family is here to see her, and that they are crying a lot, but that we all have to process in different ways.

I am fascinated by the process of death, and I am convinced it is not the end of our existence; it is only a change of form, like how soil is formed by hundreds of faded leaves, or a caterpillar becomes a butterfly through the mystery of the structure of the chrysalis.

I am fascinated also by our choices, and how they bring us to these points in our lives that are pivotal. I wrote earlier about a 5-year-old child bringing a loaded gun to my school; I recently learned that there are DNA and fingerprint kits being sent to districts across the state to help parents identify their children in the event of them being killed at school. The death cult becomes a blood cult. All the while, in the background, children are learning to read and be happy with each other and eat snacks and go to recess. My vision of my dad changes in my mind. Beth dies. I wrestle with the fact that although this job is not right for me, I do not regret it because I have learned so much. I will continue to learn every day.

Tomorrow is October 23rd. How many more days do any of us have? When will I lose my friend? Will the date be significant or will it simply be a marker for my memory? Are those two things different?

In the meantime, Cody worries about his son, his job, the house, the future, about his all-encompassing desire to be *away*. I do not wish to be away now, but I do wish for a change, a move from this place of strange obsession with guns.

Our friend Ben took a series of photos of Beth in a blue silk dress with pointed sleeves in her bed; she wanted them taken before she gets a hospital bed. She is, forever, an aesthete, a Dadaist, an artist, and a beloved person. There is one photo of her drinking her dandelion tea (good for the liver), and her cheekbones match the sharp corners of her dress’ shoulders. The maker’s mark of the teacup is sharp like her figure; tiny in a big bed, in a big room, surrounded by light, plants, and chandeliers.

She is hosting an art show November 19, a la Frida Kahlo; she will be in her bed, in a house that is pending renovation and so is a perfect setting for a dying person’s one-and-only art show. We will say goodbye in our best clothes, naturally. So many goodbyes in this life; it is hard to hold on to the present. We say goodbye to concepts, assumptions, definitions, parents, and friends. May we allow ourselves and everyone else to change.

It is midnight. Time to try to sleep; but if it doesn’t come, I will be back here in the peaceful moments: 3am tranquility.

I Hope It’s Not Just Me

I just looked out the window and it is dark.

9:00 p.m. and pitch black!

On my morning walks, I have been noticing a change to the light, but tonight I first noticed a change to the dark. The autumn is coming. I started walking every morning in March of 2020, and now I see the sunrise every day. I used to be a sunset person, but now I am a sunrise and a sunset person. Both occurrences so important, so uniquely beautiful; one of my takeaways from the times of the pandemic is that each day is so, so precious.

I lost my Dad starting now, last year. Starting now, his health switched and he began to sound different. Starting now, he left. Starting now, this year, I see the light shifting and slanting; more golden, it delivers a punch each day. It is as if it is saying: pay attention! See me! And I do.

Aging is beautiful except for two things: your body hurts and people you love begin to die. Aging teaches you so much if you are willing to see it, just like the light, and the dark.

Tonight we had chicken and potatoes and salad. Tonight we watched a documentary about psilocybin. The dog desperately wanted chicken and potatoes and salad, or so he thought.

Tomorrow it will get dark even earlier. I am loving this strange August that is cooler and rainier than June and July. Climate change is this great, scary mystery. We never know what this season will bring, or how the weather will be affected.

With a smile I watch the change. Last year, at this time, I had no idea what changes were about to occur. A year later, now, I understand just a little bit more.

Time Traveling

It all started with Mr. Yousef on Thursday.

Or perhaps, it had been percolating for a few weeks, and Mr. Yousef crystallized it in my Principal’s office, on that Thursday.

I sat at the conference table with him, talking about attendance and truancy and COVID, and I realized how many years I have been serving students in schools like my current one. I thought, in an instant, about how confusing and terrifying being new can be: you have no idea what the schools really do, or what they are like, or how the beauty at the core of them, the children, MUST be our core commitment, despite all the pitfalls and policy changes.

The thoughts led me back to Gus Garcia Middle School, in the fall of 2007: 15 years ago.

Gus Garcia has been popping up lately as it has come to my attention that a large number of those of us who taught there and who opened that school are now administrators in Austin ISD and Elgin ISD. It is definitely true that the difficult experiences at Garcia led us to leadership.

Let’s do a roll call….Dr. Melvin Bedford, once AP, is now Principal at Austin High School. Chara Harris, once a math teacher, is now Principal of Murchison Middle School. Brandy Gratten, once an English teacher, is the Principal of Martin Middle School. Ben McCormack, once an English teacher, is the Principal of St Elmo Elementary. De’Sean Roby, once Instructional Coach, is Principal of Bertha Sadler Means Middle School. Tasha Bedford, once an English teacher, is Assistant Principal of Bertha Sadler Means Middle School. Kalandra Williams, once a math teacher, is Assistant Principal of Neidig Elementary School. And me, Patience Blythe, once a science teacher, is Assistant Principal of Booker T Washington Elementary School.

As I sat in that room with Mr. Yousef, talking about attendance policy and telling him that I am known for being very, very, very aware of student attendance, I thought about those years, and why so many of us became administrators.

For many years, I have shied away from writing about the experiences I had at Gus Garcia. My issues with understanding life-work balance while working there were definitely contributing factors to my divorce in 2009. although I do believe that our marriage wouldn’t have worked no matter where either of us was working. I have shied away from it because the experiences were so intense, and so of their moment. We went through the financial crisis at that school and the election of Barack Obama; these events fundamentally changed public schools. They perhaps felt too close for real examination; I also didn’t want to upset anyone in the retelling.

But here we are, 15 years later, and schools have changed so much. In many ways they are better, and yet, the results for poor children remain the same. I wonder why that is. I have some ideas, which I will share here as the year progresses. This is my first year as an Assistant Principal, and my mentor has asked me to remember to write about it. I will.

But to go back to that meeting on Thursday afternoon with Mr. Yousef; it was one of those meetings that sends you back in time, and through time, and provides you a deep reflection on the present: that everything you have done has brought you to that exact moment in time. At that moment, we talked about truancy and withdrawing students, and I sat in that beautiful office, in that school building, and again realized that I am so lucky to have so many years of experience with which to refer.

On the day before, I was in a training for SAMA, which for those of you who are not in schools or institutional settings, is a practice of de-escalating crises that works very well. I mentioned to Wednesday’s instructor that, at Garcia, all of the teachers were trained in SAMA due to the level of need at that campus.

In other words, all roads in my mind are leading to Garcia at this moment.

It is time.

When I returned to Austin ISD in 2015 after a four-year absence, the gentleman looking at my paperwork said, “Oh. You were at Garcia. There were a lot of problems there.” I said, “Yes, there were. Whose fault do you think that was?”

Let’s dive in.

Garcia Middle School was built up on a hill, in East Austin, on the east side of 183 off Loyola Lane. It is a beautiful building that looks like a community college. The first time I went into the building, it was just a shell, and we wandered through it being told where this would be, and that. We had planning meetings in the construction trailer out front. Most of the staff had come over from Porter Middle School, which had recently been closed in South Austin.

When the school opened, it was beautiful. Huge windows let the light shine in on the east and west side. Each grade level section was painted a different color: orange, blue, and yellow. Each classroom had a plasma screen television (these were the days before Promethean boards). Each area had its own workroom with its own copier and its own computer lab (these were also the days before Chromebooks). There was a patio off the cafeteria that was planted with native plants. I was the most experienced science teacher with one year of teaching experience.

When I think about Garcia, I don’t want to enumerate its flaws and faults or describe all the things that went wrong there. To me, there is little point in dwelling on those things, and I don’t want people to feel I am pointing fingers or blaming anyone for what happened. I find it comforting and inspiring that so many of us who were young teachers there are now administrators at high-needs campuses in this area; this shows that we all learned a lot in those years, and decided to take a path that would make sure the things that happened at Garcia would never happen again under our watch.

But despite the desire to not talk about the problems, the formative aspects of my three years at Garcia keep popping up. Why is that? Is it because my time at Garcia was my first experience of true leadership? Conversely, my first experience at understanding what lack of leadership can do? Perhaps.

At Garcia, we went through three principals in one year. The first one left us in December. Before she left, she held an assembly in the gym and yelled at everyone in a voice I will never forget: it was a voice of desperation, sadness, defeat, and acknowledgment that what she had done had not worked. She was replaced by an amazing changemaker who came into that school with his giant gold rings, announcements on the PA, reward systems for students and teachers, and songs in the cafeteria. He changed everything in mere weeks. The third was a principal that no one liked; she divided the cliques and friend groups. She was challenging. She broke the staff apart to rebuild it. She was the only person in my three years there who could get the students to listen to her and only her simply by asking. She could talk to them. When I decided to leave, she asked me, “So….how is Bedichek Middle School?”. I told her that I had to learn how to teach; that all I knew was how to control classes but I needed to learn the other aspects of teaching. She and other administrators there told me that there are kids who need help everywhere. They were, of course, right.

One of my takeaways from being in Title 1 public schools for so long is that people with years of experience have opinions and observations that are priceless; they are diamonds. You may not agree with everything, but there is a truth that resonates and is useful to apply to your own situation. Ultimately, experience gives us perspective so that when big changes occur, like what is happening now, we remember and know that we will make it through this, too. Younger teachers don’t know this. I didn’t know this back in 2007 at Garcia Middle School.

I had two rooms at Garcia: first one without a window, and later, one with two gorgeous windows on the second floor that I often opened each morning because the fog would roll into the classroom and I loved it. It was a very foggy place; a hilltop that was covered in cloud in the early mornings and backed up to a greenbelt that was never named as such due to where it was in the city. In the back of the room, I had a coffee maker that some other teachers used. When I wasn’t at school, which was rare, students would open the windows and throw textbooks onto the roof of the first floor.

During transitions, why do we drift backward into memory? Does it ground us somehow? Remind us that if we survived then, we will survive now? Do the memories help us interpret the realities of this moment? It is hard to say.

I don’t know what stories from Garcia will pop up here. Will it be the time we made cricket houses in the science elective and I didn’t realize that crickets eat cardboard and all the crickets escaped to be found by the custodians? Will it be how the 8th graders self-segregated in class every time you turned your back on them? Will it be the city gang truce meeting in the library? Will it be the time that student brought a giant knife in a Jordans box to kill me? Will it be the time the two boys got in a fight and one shot the other one in the face (both survived)? Will it be how the kids stashed drugs in the upstairs 7th-grade boys’ bathroom ceiling tiles and sold them at lunch? Will it be the time I was observed by the district and a boy was walking across the tops of lab tables while another was hiding in a cabinet, and others were making and sending darts into the ceiling tiles and yet, I still received a positive evaluation? Will it be the time that I wrote a blog post about advisory that somehow was picked up by a national publication and ended up on the front page of the Austin American Statesman? Or will it be completely different memories? We shall see.

If I could share one truth about serving students in Title 1 schools with anyone who would listen at this exact moment in time, it would be this; if you are not in the schools, you have no idea what happens within them, and you do not understand their importance. The importance of the schools is critical; it is key to the future of the country as a whole. The more they get broken down, under-funded, criticized, or have unfunded mandates applied to them (I am looking at you, HB 4545), the impacts on the children and adults in the schools are massive.

I remember when President Obama was elected, when Dr. Helen Johnson became principal, when TEA came in to audit our campus, and we began to talk about this new test called STAAR. It all happened there, at that campus. So many things happened there, and I can remember so many of them vividly; they were that intense and meaningful.

At that school, I wore striped knee socks every day; I had probably 10 or so pairs. The students asked me why I wore them every day, and I told them it was because I had prison tattoos on my legs and I couldn’t show them. Would I say this today? Definitely not. But the kids loved it and thought it was hilarious. They called me “Colorful” there, not Ms. Blythe, and never once questioned how someone who had been in prison could be their teacher, let alone this tall, weird, white lady. In fact, those students *insisted* that I was not white. At the time, I didn’t understand what they meant.

What is happening in the schools this year is heartbreaking: how can there be so many openings? One of the biggest things I learned at Garcia is how I cannot solve the world’s problems; I can only hope to influence a small group of people in front of me. I learned about the importance of the students in my care, and the teachers that I could help. As our year begins, my current campus has the lowest turnover rate in our district and only has one open position. That tells me a lot about our school. That tells me we can grow; we have a whole crew of caring people who chose to stay after the hardest year I have ever experienced as a public school educator.

I wish I could take you all, the general public, the Texas state legislature, the US Congress and Senate, and bring you into the schools. You would see the needs; you would meet the students and you would see how much they need access to a high-quality education delivered by caring adults. School is another form of nutrition; anyone who tells you it isn’t critical to every child has some hidden agenda that I am not interested in understanding. I wish I could bring you into these classrooms; like the time at Garcia, when I had the most bonkers class I had ever had up to that point. The students never stopped talking: I didn’t know how to help them calm down then, and I randomly, in desperation, put on a video of Charlie Chaplin. Almost instantly, they asked, “why is no one talking?” They then completely calmed down, and from then on, Charlie Chaplin videos were rewards in that class. To that end, one day I told the students that I had lost my voice and could not speak, and they had to find ways to help me communicate. All of a sudden, everyone could raise their hands before speaking.

Schools are magical and majestic. But mostly, they are critically important to the lives of children. Throughout the pandemic, the lives of children have been an afterthought. They have not been our priority. Government leaders seemed to think they would just bounce back and be fine after all of the time away from school. Those of us in the schools understand that this concept is a false assumption; the time away was damaging to so many of them, in many ways that we, as adults, will probably never truly understand.

I thank you for joining me here and reading my ramblings about grief, life, schools, and our country. I do love it so. I love its children most of all. I hope you do, too, even if you don’t have any of your own. And I do hope you think about how important school was for you, and act in kind.